Question 1

i have ehlers-danlos syndrome. which medicines should i talk to my doctor about for my injuries or scars?

Accepted Answer

It depends: Most of the scars and injuries  will heal but they will still remain as scars. They may not be strong scars.There are  no  fda label drugs to treat  these  and prevention is your  best  therapy. The better  your  muscle  tone the better you can be  protected. Please exercise.

Question 2

ehlers danloss symdrome ?

Accepted Answer

"Ehlers–Danlos": Ehlers–danlos syndrome (also known as "cutis hyperelastica") is an inherited tissue disorder caused by a defect in the body's synthesis of collagen. Collagen in connective tissue helps tissues to resist deformation. In the skin, muscles, ligaments, blood vessels and organs, collagen plays a very significant role and with increased elasticity or "stretchiness" they may not work right.

Question 3

how to check for ehlers-danlos?

Accepted Answer

A few different docs: Diagnosis is typically clinical and based on exam findings. A medical genetics physician may be helpful in diagnosis if there is concern about an EDS type other than type 3. A physical medicine and rehabilitation physician would be best and helping to coordinate a plan for functional recovery. A rheumatologist would be helpful to look for other causes of joint pain such as an inflammatory disorder

Question 4

what is ehlers-danlos syndrome?

Accepted Answer

Extreme joint laxity: Ehlers-danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels.

Question 5

how common is ehlers danlos type 3?

Accepted Answer

somewhat common: Depending on the literature 1 : 5, 000 to 1: 20, 000.

Question 6

how common is ehlers-danlos syndrome?

Accepted Answer

1 per 5,000: The combined incidence is estimate at one case per 5, 000 individuals.

Question 7

can ehlers-danlos syndrome get worse?

Accepted Answer

Yes it can: Because of the tendom laxicity, joints may not be as stable as normal joints. That can lead to increased risk of osteoarthritis particularly in larger joints such as the shoulder, hips, and knees. There may also be complications of chronic joint dislocation and chronic pain. The disease itself should not lead to any specific inflammatory diseases such as lupus or ra.

Question 8

what does it mean to have ehlers-danlos?

Accepted Answer

Many things!: Ehlers-danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels.There are six major types and at least five minor types of ehlers-danlos syndrome (eds). A variety of gene mutations (changes) cause problems with collagen, the material that provides strength and structure to skin, bone, blood vessels.

Question 9

what are the tests for ehlers-danlos syndrome?

Accepted Answer

Usually none: The diagnosis is usually made on physical examination.  Since it's not something that can be treated with a pill, there's seldom any need to find the exact gene responsible (and there are many different ones that can do it).  For the very severe vascular form, a geneticist may confirm this, before or after birth.  I know several docs with e-d.  Good luck.

Question 10

what kind of disease is ehlers-danlos syndrome?

Accepted Answer

Big answer: Ehlers-danlos syndrome is a group of diseases with characteristic joint laxity, very lax skin, easy bruising and weakened blood vessels.  There are several gene mutations for the various clinical pictures of this syndrome.  Beyond that i would suggest you research a more indepth answer online.

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A member asked:

I have ehlers-danlos syndrome. which medicines should i talk to my doctor about for my injuries or scars?

A member asked:

Ehlers danloss symdrome ?

A member asked:

How to check for ehlers-danlos?

A member asked:

What is ehlers-danlos syndrome?

A member asked:

How common is ehlers danlos type 3?

A member asked:

How common is ehlers-danlos syndrome?

A member asked:

Can ehlers-danlos syndrome get worse?

A member asked:

What does it mean to have ehlers-danlos?

A member asked:

What are the tests for ehlers-danlos syndrome?

A member asked:

What kind of disease is ehlers-danlos syndrome?

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