Question 1

can a child of 13 with cystic fibrosis play vollyball without struggling?

Accepted Answer

It's possible: Not all children (or adults) with CF have significant respiratory issues. So, many children participate in sports with some or no problems.  Using their inhalers may help tolerate activities better. Care should be taken to exercise in moderation, not to exhaustion. Additionally, the risk of dehydration may be higher with this disease, so drinking fluids is very important during sports.

Question 2

can a 13 yr old with cystic fibrosis play vollyball without struggling?

Accepted Answer

Depends: Cystic fibrosis can vary from patient to patient. Symptoms and severity vary tremendously. So yes, it possible for a 13 year old to be able to play volleyball and other sports without significant problems. I would recommend consulting with your CF center physician who will be able to advise you in more specific detail.

Question 3

art around what age do the obvious symptoms of cystic fibrosis set in? i'm worried of the disease although i played football for 5 years since 7th gra

Accepted Answer

Variable: There are many different presentations, and sometimes adults are diagnosed. Typically there will be a history of pulmonary, sinus infections and GI problems.

Question 4

would getting a lung transplant let someone with cystic fibrosis play sports?

Accepted Answer

Yes: Lung transplantation is a very important treatment option for people with cystic fibrosis that is severely limiting their physical ability.  If successful, and it usually is, lung transplantation can offer a person with cystic fibrosis a renewed chance to regain the ability and energy to do many activities that others without this condition take for granted, including some sports.

Question 5

what are the chances of a child getting cystic fibrosis among the different racial groups in the u.s.?

Accepted Answer

Overall 1/3700: Acording to the CF foundation: the overall birth prevalence is 1/3700 . It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000.
More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents.

Question 6

how can i cope with a child with cystic fibrosis?

Accepted Answer

Clinic/online: Your CF clinic should be able to help you and other family members, and direct you towards available help channels, a lot of them online. The clinic's social worker should be a great source for that information. A great source for CF families and good place to start online is the cystic fibrosis foundation website http://www.Cff.Org/livingwithcf/.

Question 7

what are the annual hospitalization costs of having a child with cystic fibrosis?

Accepted Answer

Varies considerably: There is considerable variance between children and between institutions for the cost of of hospitalizing a child with cf.  Children have variable needs for hospitalization depending on their genotype and adherence to their regimen, and (unfortunately) there is a large amount of variance in practices while hospitalized and costs for these practices.

Question 8

how do i tell my employer i think her child has cystic fibrosis?

Accepted Answer

It depends...: It really depends on your relationship with that person and on your ability/knowledge in recognizing cystic fibrosis just by looking at her child. It is not easy. Most likely, you could mention your concern and recommend a consult with a physician.

Question 9

what toys would help a child with cystic fibrosis?

Accepted Answer

Any: Toys that involve blowing can be helpful, like whistles, bubbles, etc. Any blowing type toy can help with the respiratory therapy that a child with cystic fibrosis may have.

Question 10

what is the name of the child's test for cystic fibrosis?

Accepted Answer

Sweat Test: There is genetic testing testing analyzing dna, but you are probably thinking of a "sweat chloride test". In kids with cf, this chemical test of stimulated sweat is elevated.

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Can a child of 13 with cystic fibrosis play vollyball without struggling

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Can a child of 13 with cystic fibrosis play vollyball without struggling?

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Can a 13 yr old with cystic fibrosis play vollyball without struggling?

A member asked:

Art around what age do the obvious symptoms of cystic fibrosis set in? i'm worried of the disease although i played football for 5 years since 7th gra

A member asked:

Would getting a lung transplant let someone with cystic fibrosis play sports?

A member asked:

What are the chances of a child getting cystic fibrosis among the different racial groups in the u.s.?

A member asked:

How can i cope with a child with cystic fibrosis?

A member asked:

What are the annual hospitalization costs of having a child with cystic fibrosis?

A member asked:

How do i tell my employer i think her child has cystic fibrosis?

A member asked:

What toys would help a child with cystic fibrosis?

A member asked:

What is the name of the child's test for cystic fibrosis?

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