9 doctors weighed in:

Will my child with nf1 be mentally delayed?

9 doctors weighed in
Dr. Gerald Mandell
Nuclear Medicine
3 doctors agree

In brief: Uncommon

About half of children with NF1 have a learning disability.
It is uncommon, however, for a child with NF1 to be mentally retarded.

In brief: Uncommon

About half of children with NF1 have a learning disability.
It is uncommon, however, for a child with NF1 to be mentally retarded.
Dr. Gerald Mandell
Dr. Gerald Mandell
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1 comment
Dr. Johanna Fricke
I agree. Although intelligence is usually within the normal range, 50-60% of children with NF 1 have learning difficulties. http://www.nfauk.org/assets/downloads/CTFnf1aboutlearningdisabilities.pdf, the Children's Tumor Foundation's guide for parents, explains the more common learning disabilities, effective educational methods & your child's right to have special educational supports, if needed.
Dr. Carla Enriquez
Pediatrics
3 doctors agree

In brief: Maybe, maybe not

Neurofibromatosis doesn't necessarily lead to developmental or intellectual delay.
It's more of a structural problem. If a neurofibroma is ina critical location it may have neurological consequences. But this is rare. Other neurological problems are more common. Seizures, weakness, paralysis. See a specialist in nf at a children's hospital.

In brief: Maybe, maybe not

Neurofibromatosis doesn't necessarily lead to developmental or intellectual delay.
It's more of a structural problem. If a neurofibroma is ina critical location it may have neurological consequences. But this is rare. Other neurological problems are more common. Seizures, weakness, paralysis. See a specialist in nf at a children's hospital.
Dr. Carla Enriquez
Dr. Carla Enriquez
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Dr. Ed Friedlander
Pathology

In brief: Probably not

Most of these people are fine.
Many have few or no problems. I know a couple of physicans and an engineer who are affected.

In brief: Probably not

Most of these people are fine.
Many have few or no problems. I know a couple of physicans and an engineer who are affected.
Dr. Ed Friedlander
Dr. Ed Friedlander
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Dr. Johanna Fricke
Pediatrics - Developmental & Behavioral

In brief: Dr. E is right, plus

Adhd & both language--based & non-verbal learning disabilities occur in 30-65% of people with nf 1.
A learning disability means one's iq is in the normal range. Glaucoma & optic gliomas can impair vision. With early intervention 0-3 & early childhood special education services age 3-5 many children with nf 1 are in an inclusion classes with supports by 1st grade. See ctf.Org for more info & tips.

In brief: Dr. E is right, plus

Adhd & both language--based & non-verbal learning disabilities occur in 30-65% of people with nf 1.
A learning disability means one's iq is in the normal range. Glaucoma & optic gliomas can impair vision. With early intervention 0-3 & early childhood special education services age 3-5 many children with nf 1 are in an inclusion classes with supports by 1st grade. See ctf.Org for more info & tips.
Dr. Johanna Fricke
Dr. Johanna Fricke
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Dr. Willa Terry
Pediatrics

In brief: Developmental Tests

Neurofibromatosis causes unusual growth of tissue along the nerves, putting pressure on affected nerves and causing nerve damage and loss of function.
Associated symptoms include, but are not limited to: visual disturbances, seizures, skin lesions, and bone fractures. Learning differences may be present.

In brief: Developmental Tests

Neurofibromatosis causes unusual growth of tissue along the nerves, putting pressure on affected nerves and causing nerve damage and loss of function.
Associated symptoms include, but are not limited to: visual disturbances, seizures, skin lesions, and bone fractures. Learning differences may be present.
Dr. Willa Terry
Dr. Willa Terry
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