Not really. The truth is that in a relapsing remitting type disease pattern like crohns disease, if your symptoms are controlled without medications, then you probably don't need to be on them at all. There are studies that show maintenance treatment will jdecrease time to relapse. There is also evidence of priobiotics for crohns but I wouldn't recommend them without a specific doctors recommendation.
Hi, I have crohn's disease and recently I've been passing a lot of black coloured diarrhoea. I haven't changed my medication, should I worry?
Maybe. If the symptoms last more than a week or so, you may want to visit your GP or your GI doc if you have one. Black stools can be indicative of bleeding somewhere in your intestinal tract, which can cause issues if it goes unresolved.
I have Crohn's disease. I been while not taking any medications or visiting my doctor but I feel quite well. Is that ok?
Crohn's. Sure. Keep stress under control & visit your doctor for routine checkups or more often if symptoms develop.
No. I feel that everyone with documented crohn's disease (cd) should be on therapy with only a few exceptions. If your cd is at the end f the small bowel, you will likely develop a stricture without treatment. If it is in the colon only, the disease will not leave you alone. It is much easier to prevent complications by adequate treatment than to try and initiate treatment when complications occur.
Immunosuppressives. Big word but the goal of therapy in crohn's disease is to decrease the inflammation in the lining of the bowel. The two familes of medications used are anti-inflammatory medications - thick Motrin for the gut and immunosuppressive medications. Asa compounds such as pentasa, (mesalamine) steroids and medications such as 6-mercaptopurine and remicaide are all used based on how severe your symptoms are.
What works for you! There are many medications for crohn's disease because none of them work for everyone and they all have side effects. Each patient is matched with the medication most likely to work with the least side effects. Medications often need to be changed. Steroids are often used to gain initial control but then removed when longer acting drugs with fewer side effects can take over.
Clinical Trials. Although available, experimental drugs are given in clinical trials, usually in academic or private institutions with doctors involved in research, where patients that have failed to existing treatment are treat. There are a variety of immunotherapy medications like Remicade (infliximab) that are available for Crohn's you could discuss with your doctor about. Ustekinumab is a clinical trial drug for Crohn's.
None decrease infl. Decreasing symptoms not same as decreasing inflammation. Herbals may or may not decrease spasm in bowel, some may aggravate. Gut bacteria increasingly studied, but science in infancy, and bacteria aren't like a military drill team-not orderly. Probiotics may be of modest benefit (variable, not all the same); low fat, high omega 3 intake maybe modest help. Spec cho diet poor data. Check ccfa. Org.
Controversial. Many believe this has little effect on the long term prognosis but after discussing with your physician and excluding drug interactions, it may be a good option for you.
The non drug treatments for Crohn's disease include: Hospitalization, Smoking cessation, Supportive care, Surgery.
What is the safest and most effective systemic medication that can be used for long periods to treat Crohn's disease?
Safe OR Effective? No drug is entirely safe, but you are correct in wanting to balance efficacy against safety. Biologics are unquestionably the most effective crohn's medication class, followed by immunomodulators & corticosteroids. Each of these has however significant associated safety concerns which can be minimized when used appropriately in a physician-monitored setting. Get a good GI doctor, & go from there!