Cardiomyopathy. Although it is difficult to put a time line on this condition, these patients eventually will need cardiac transplant and accordingly they should be referred to a transplant center so that they can placed on transplant list. Occasionally, cardiomyopathy may be part of another disease such as muscular dystrophy in which case the life expectancy is more likely related to that underlying disease.
Getting better. Depends on the degree of heart failure which surprisingly is not always directly related to the weakness of the pump which is measured as ejection fraction. Neurohormonal activation which is basically chemical response to a weak pump plays a larger role in the outcome. Many useful medications interrupt different steps in this chemical response and improve heart failure and life expectancy.
Often, normal. The spectrum is vast. If diagnosis is based purely on genetic test (i.e. Screening), many people with the gene never develop any cardiac abnormality. If hypertrophy is present, one needs assessment by a cardiologist to determine future risk of serious rhythm problems, based on several measurable variables. It's common for people with this disorder to have completely normal lifespan. Read more...