NF does not go away
But it can be managed! and you have begun to do that by asking good questions.
As you get the right answers and take steps to keep healthy, you will find that you will worry a lot less. A clinical geneticist and a neurologist will be very helpful for either nf type 1 or nf type 2. People with these genetic conditions have them from before they are born. http://www.kumc.edu/gec/support/neurofib.htm.