8 doctors weighed in:

How will having dementia with Lewy bodies affect my long-term health?

8 doctors weighed in
Dr. Gurmukh Singh
Pathology
4 doctors agree

In brief: Poorly

Lewy body demential, like alzheimer's disease is a progressive disorder of the brain.
Some medications may slow the progress of early disease. Please consult a neurologist.

In brief: Poorly

Lewy body demential, like alzheimer's disease is a progressive disorder of the brain.
Some medications may slow the progress of early disease. Please consult a neurologist.
Dr. Gurmukh Singh
Dr. Gurmukh Singh
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1 comment
Dr. Ed Friedlander
It is faster than Alzheimer's, tends to produce strange visions and ideas, there may be a movement disorder, and it makes one respond poorly to some of the neuroleptic medications. You have my sympathy.
Dr. Susan Uhrich
Psychiatry
3 doctors agree

In brief: Memory loss

Defined as any dementia means a loss of day to day functioning.
But dementia with lewy bodies does not directly effect physical health.

In brief: Memory loss

Defined as any dementia means a loss of day to day functioning.
But dementia with lewy bodies does not directly effect physical health.
Dr. Susan Uhrich
Dr. Susan Uhrich
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1 doctor agrees

In brief: Features of disease

Neurodegenerative d/o featuring milder physical parkinsonism than parkinson's disease typically.
(slowed movements, stiff/rigid muscles & posture, possibly resting tremor). But with early dementia, often with associated psychosis (visual hallucinations, delusional thoughts), excessive sleepiness, depression/anxiety/apathy, & rbd. Rbd = rem behavior d/o, causing acting-out of dreams in rem sleep.

In brief: Features of disease

Neurodegenerative d/o featuring milder physical parkinsonism than parkinson's disease typically.
(slowed movements, stiff/rigid muscles & posture, possibly resting tremor). But with early dementia, often with associated psychosis (visual hallucinations, delusional thoughts), excessive sleepiness, depression/anxiety/apathy, & rbd. Rbd = rem behavior d/o, causing acting-out of dreams in rem sleep.
Dr. Robert Hutchman
Dr. Robert Hutchman
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1 doctor agrees

In brief: Cognitive Decline

Dopamine meds for physical parkinsonism: Azilect (mao-b selective inhibitor) & sinemet +/- Comtan (stalevo (carbidopa and levodopa and entacapone) is both together).
Tailor rx watching for side effects. Avoid Dopamine agonists (requip xl/mirapex er/neupro)--too side effect prone for lewy body patients. For dementia: namenda, paired with Exelon patch or aricept. For psychosis: seroquel or even clozaril. For excess sleepiness: nuvigil.

In brief: Cognitive Decline

Dopamine meds for physical parkinsonism: Azilect (mao-b selective inhibitor) & sinemet +/- Comtan (stalevo (carbidopa and levodopa and entacapone) is both together).
Tailor rx watching for side effects. Avoid Dopamine agonists (requip xl/mirapex er/neupro)--too side effect prone for lewy body patients. For dementia: namenda, paired with Exelon patch or aricept. For psychosis: seroquel or even clozaril. For excess sleepiness: nuvigil.
Dr. Robert Hutchman
Dr. Robert Hutchman
Thank
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