Looking forward to going on a trip to the beach with friends this year. Already started getting in shape. Now I've been told I have chronic granulomatous disease. How can I explain to them how I got it?

You don't have to. You do not have to explain anything to your friends unless you want to! Go and have a great time. You have had this since birth and probably a mild form if it has just recently been diagnosed. You will have to be more vigilant when you are feeling sick as you may need antibiotics for infections sooner than anyone else you know. See comment for more info.
Why explain? You don't have to explain anything if you don't want to; it's none of anyone's business. But are you sure the diagnosis is correct? CGD is quite rare; only about 20 cases are diagnosed in the US each year. Did a doctor diagnose it? Did you get a second opinion?

Related Questions

My mother works long hours so I can go to college. When I ask about her, she says she likes to help me. Now she says her doctor told her weeks ago she has chronic granulomatous disease. What will that do to her?

Please see below. I advise having a meeting with you, her doctor, and her -- it would be unusual for someone to be diagnosed with this at her age, but there are other very different conditions with similar names. Cgd symptom onset is usually in infancy or childhood, and 90% of patients with it are males. Her doctor can tell you what her diagnosis is, and what its impact on her will be.
Testing needed. Chronic granulomatous disease is diagnosed with specialized testing checking the function of white cells, it is confirmed with a dna test. Women might have a milder form of the disease, according to the degree of white cell function, the patient would be susceptible to certin infections. This is a congenital condition, her history of infections can tell how susceptible she is to them.

I have chronic granulomatous disease. Could you tell me what is good for that?

Early treatment. People with Chronic Granulomatous disease are prone to infections. Early treatment of any suspected infection is critical. Graulomas may also for in the gastrointestinal system causing colitis so seeing a gastroenterologist regularly would be a good idea if you have any gastrointestinal symptoms.

What sort of disease is chronic granulomatous disease (c.G.D.)?

Immunodeficiency. The body's immune system is made of 3 kinds of cells: t-cells, b-cells and WBC (white blood cell). Wbcs roam the various tissues and engulf bacteria and fungi they encounter and then digest them inside themselves. When a crucial molecule, the reactive oxygen species (ros) is not present to enable the killing, the infection is not stopped. So these patients get sick very often.

What symptoms usually go along with chronic granulomatous disease?

Severe infections. This disease affects the immune system so that they are unable to fight off common germs and get very sick from infections that would be mild in healthy people. These severe infections can include skin or bone infections and abscesses in internal organs (lungs, liver, brain). Children with this disease are healthy at birth but usually develop severe infections in infancy or early childhood.

What is chronic granulomatous disease typically?

Immunodeficiency. White blood cells (WBC) roam the various tissues and engulf bacteria and fungi they encounter and then digest them inside themselves. When a crucial molecule, the reactive oxygen species (ros) is not present to enable the killing, the infection is not stopped. So these patients get sick often.

What are the tests for chronic granulomatous disease?

Chronic infections. Chronic granulomatous disease (cgd) is a genetic disorder in which immune system cells are unable to kill some types of bacteria and fungi. The disorder leads to long term (chronic) and repeated (recurrent) infections. The condition is often discovered in very early childhood. Milder forms may be diagnosed at a later age. Check this site. Http://www. Ncbi. Nlm. Nih. Gov/pubmedhealth/pmh0002219/.

What are the symptoms of chronic granulomatous disease?

Chronic infections. Chronic granulomatous disease (cgd) is a genetic disorder in which immune system cells are unable to kill some types of bacteria and fungi. The disorder leads to long term (chronic) and repeated (recurrent) infections. The condition is often discovered in very early childhood. Milder forms may be diagnosed at a later age. Check this site. Http://www. Ncbi. Nlm. Nih. Gov/pubmedhealth/pmh0002219/.

What can I try at home to treat chronic granulomatous disease?

See md. This is uncommon condition that can affect many organs and needs experienced medical attention depending upon organs involved-rheumatology, pulmonary or in severe case ay need team approach. This has serious consequences and should not be treated with supplements as sole approach.
Nothing other than.. ..Maintaining good hygiene including frequent hand washing and avoiding direct contact with sick people as much as possible.

Is there more than one good way to treat chronic granulomatous disease?

Yes! Cgd is an immune deficiency that leads to frequent bacterial and fungal infections. Current treatment can include aggressive and prolonged antibiotic, antifungal, and Prednisone use (sometimes continuously for each as prevention), interferon, white blood cell transfusions, stem cell transplantation, and sometimes bone marrow transplantation.
Antibiotics. Due to frequent infections, interferons may reduce severity. Treatments may require specialist.