Are any special tests needed, or can a regular doctor see me for my cystic fibrosis?

SPECIALIST. Cystic fibrosis (CF) is a complex, chronic illness, and should probably best be managed by someone who sees a lot of CF patients. This probably means a pulmonologist, most likely at an academic hospital.
Both. A CF patient is a great example of why a medical home is good for patients.Many routein life events are appropriately handled by your fp/ped/im while other issues related to CF are handled thru coordinated care of the specialties involved. Your primary physician is well aware of the direction problems can head & can redirect you to your pulmonoligist or GI if appropriate.
Cystic Fibrosis. I would see a lung and a GI doctor for this chronic problem.
CF center. I most countries, it is highly recommended that CF patients be followed by an CF center. CF centers are centers that employ physicians with expertise on this disease. All CF patients should have a primary care physician for their overall care, but they should also be followed by a CF center.
Special tests. Special tests are needed to diagnose cystic fibrosis. Blood tests are not enough, a positive test has to be interpreted in the right clinical context. A negative test does not rule it out. Best is to see a pulmonologist, specifically a cystic fibrosis specialist or cystic fibrosis clinic if you have access to one.

Related Questions

Can there be a way to help doctors find a cure for cystic fibrosis faster?

Research $. Probably the best way for someone to help find a cure for cystic fibrosis (cf), or any other disease for that matter, is to help raise money for research (basic science, translational, or clinical trials). Encouraging patients with CF to participate in clinical trials can also help. There are a number of national organizations that help raise funds for CF (www.Cff.Org) for example. Read more...

What would the synptoms of adult onset cystic fibrosis be? And would it be likely at my age. Even worth asking my doc about?

Sure. There are about 1000 things that are more likely to be causing whatever symptoms you may be having. Your doctor can also help with these things. Read more...
GI or pulmonary. Symptoms in the pulmonary system such as chronic infection or airway problems (bronchiectasis) or GI revolving around pancreatic disease (diabetes, malabsorption or pancreatitis). Adult forms are being described more and more. If you have problems in these areas, or have a family member with cf, check with your physician about a work up. Read more...

A family member of mine was diagnosed with cystic fibrosis. Is this something I should tell my doctor about? I have micro hematoria in the urine

Family history. It is important for your doctor to know your family history.In this instance your hematuria is not related to cf. You could have a problem with calcium kidney stones, hyperparathyroidism or renal tubular acidosis. See your internist for evaluation and help. Read more...