20 doctors weighed in:
Should I see a specialist for wegener's granulomatosis, or can my regular doctor take care of it?
20 doctors weighed in

Dr. Douglas Arenberg
Internal Medicine - Pulmonary Critical Care
12 doctors agree
In brief: Uncommon problems
...Like wegener's require someone with experience to manage all the myriad manifestations and potential problems (how's that for alliteration) that can come with the disease or its treatment.
Its possible but unlikely that your regular doctor has such experience, if i had wegener's i would be looking to at least have my doctor consult with someone who sees this problem frequently.

In brief: Uncommon problems
...Like wegener's require someone with experience to manage all the myriad manifestations and potential problems (how's that for alliteration) that can come with the disease or its treatment.
Its possible but unlikely that your regular doctor has such experience, if i had wegener's i would be looking to at least have my doctor consult with someone who sees this problem frequently.
Dr. Douglas Arenberg
Dr. Douglas Arenberg
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1 comment
Dr. Martin Raff
Fortunately there are not many doctors who see Wegeners frequently. A good pulmonologist or rheumatologist should be capable of managing this effectively
Dr. Arthur Heller
Internal Medicine - Gastroenterology
7 doctors agree
In brief: If experienced w/it
If your doc has ample experience with this uncommon disease, then yes.
However, it may be in your best interest to seek out the opinion of specialists who have had ample experience, whether a pulmonary doc, ent, kidney specialist (nephrologist), hematologist (blood specialist), and/or immunologist, depending on the severity of the disorder. Any/all should work with your doc.

In brief: If experienced w/it
If your doc has ample experience with this uncommon disease, then yes.
However, it may be in your best interest to seek out the opinion of specialists who have had ample experience, whether a pulmonary doc, ent, kidney specialist (nephrologist), hematologist (blood specialist), and/or immunologist, depending on the severity of the disorder. Any/all should work with your doc.
Dr. Arthur Heller
Dr. Arthur Heller
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1 comment
Dr. Tarek Naguib
need a specialist depending on the organ involved.
Dr. Ed Friedlander
Pathology
In brief: Specialist consult
Since untreated Wegener's is fatal, and since the meds are very powerful and can have some nasty side effects, you'll do best to get at least a specialist review before initiating treatment.

In brief: Specialist consult
Since untreated Wegener's is fatal, and since the meds are very powerful and can have some nasty side effects, you'll do best to get at least a specialist review before initiating treatment.
Dr. Ed Friedlander
Dr. Ed Friedlander
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Chinelo Ikpeama
Obstetrics & Gynecology
In brief: If needed
Your primary care physician may be managing your disease well.
However, if you are having constant flare-ups of lung and/or kidney diseases, along with upper airway exacerbations, you may want to consider adding a nephrologist and/or pulmonologist to your treatment care. If your disease is well-managed then a specialist should not be necessary.

In brief: If needed
Your primary care physician may be managing your disease well.
However, if you are having constant flare-ups of lung and/or kidney diseases, along with upper airway exacerbations, you may want to consider adding a nephrologist and/or pulmonologist to your treatment care. If your disease is well-managed then a specialist should not be necessary.
Chinelo Ikpeama
Chinelo Ikpeama
Answer assisted by Chinelo Ikpeama, Medical Student
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Dr. Aaron Milstone
Board Certified, Internal Medicine - Pulmonology
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