As stated, seizures
in boys with MEC P2 may not respond to treatment with anti-epileptic medications.
Find information on http://ghr.nlm.nih.gov/condition/mecp2-duplication-syndrome. The contact for the MEC P 2 annual family conferences is Pam Albert, email@example.com. If she is no longer coordinating them, she will give you contact information for the person who is. Don't keep going without information & support.