Why are there still many doctors who have never heard of interstitial cystitis?

Dx of Exclusion. Interstitial cystitis (ic) is defined by a cluster of symptoms: urgency, frequency and bladder pain, which is only temporarily relieved by emptying. Urologists often see this entity and related syndromes of chronic painful bladder (cpb). Diagnosis results from exhausting other possible causes. Treatment is difficult, tailored to the patient and often inadequate. Seek support group help.
Atypical diagnosis. Interstitial cystitis, is somewhat rare, without any clear diagnostic criteria. Hard to identify things that don't have a clear definition. There isn't a great test for it either.

Related Questions

Hi doctors, can you tell me what is interstitial cystitis?

Non-infectious. inflammation of the bladder. The cause is not known and it is a chronic affliction associated with urinary frequency and urgency, and abdominal pain. See this site for more info. http://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/basics/definition/con-20022439. Read more...

How to doctors know if you have interstitial cystitis? What is the range of cost for tests? I don't have insurance but have every symptom. I am fearful of costs but want relief!

Dx of exclusion . All other possible diagnoses have to be evaluated and excluded to arrive at a diagnosis of interstitial cystitis. There is no one test that will diagnosis it. Read more...
Clinical judgement. Interstitial cystitis is a clinical diagnosis and does not require any partyicular tests . Tests are required only to rule out other conditions that have close presentation , like uti, cancers ... If there is any suspicion . Therefore at least in theory your costs would be only an office visit to a doctor. Read more...
Interstitial cystitis. Most common symptom is painful urination, that gets better with small urination voiding and recurs with bladder filling. A simple urinary analysis is all that is needed for lab testing. Most times there's no need for treatment since this is not a sign of more severe disease. Avoiding certain foods can help including caffeine, alcohol, artificial sweeteners, and carbonated beverages. Read more...

Why does my doctor think that I don't have interstitial cystitis if I feel pain all the time?

Bladder infection. It depends on the testing which was done and if you had cystoscopy, as to the determination of bladder inflammation. If the pain is not only during urination or general abdominal pain, there may be many possible causes, unrelated to the bladder. Read more...

Do you know if there are doctors who specialise in interstitial cystitis or do you have to see a urologist?

InterstitialCystitis. Men should follow with urologist Women should follow with either a urologist or urogynecologist I have found that working with Interstitial Cystitis patients that some have found relief with working with an Integrative Medicine Physician, acupucturists osteopathic/chiropractic, nutritionist, herbalist, Homeopathic or Naturopathic Physicians. Read more...