1 doctor weighed in:

NF1 patient suspect pheo tumor. Plasma Metaneph .32(<0.50) normetaneph 1.79(<0.90) 24hr urine meta 213(36-190) normeta 478(35-482). Is a tumor likely?

1 doctor weighed in
Dr. Nicole Touchet
Family Medicine

In brief: Pheochromocytoma

Neurofibromatosis Type 1 can put you at a higher risk for several issues, including otherwise rare pheochromocytomas.
Overall your levels are helpful for current assessment as well as for future comparison. Other tests may need to be done for assessment. Please discuss your concerns with your doctor. There are also some excellent Neurofibromatosis Clinics that may be helpful for your care.

In brief: Pheochromocytoma

Neurofibromatosis Type 1 can put you at a higher risk for several issues, including otherwise rare pheochromocytomas.
Overall your levels are helpful for current assessment as well as for future comparison. Other tests may need to be done for assessment. Please discuss your concerns with your doctor. There are also some excellent Neurofibromatosis Clinics that may be helpful for your care.
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