2 doctors weighed in:

My daughter is a twin and 7 years old she is missing 13q21-32. How can we research proper therapies for speech and physical? any top doctors to find

2 doctors weighed in
Dr. James Ferguson
Pediatrics
1 doctor agrees

In brief: Welcome to confusion

You are unlikely ever to find a special therapy or treatment protocol for this deletion.
With luck you will find helpful people at the public school that design a set of modifications to her program that includes speech & physical therapy. Input from a developmental pediatrician or child neurologist can help the process. Her needs will be similar to others in the system.

In brief: Welcome to confusion

You are unlikely ever to find a special therapy or treatment protocol for this deletion.
With luck you will find helpful people at the public school that design a set of modifications to her program that includes speech & physical therapy. Input from a developmental pediatrician or child neurologist can help the process. Her needs will be similar to others in the system.
Thank
1 doctor agrees

In brief: Speech and Physical

Does your daughter have an Individualized Education Plan (IEP)? She may be eligible for school based physical and speech therapy.
Her genetic deletion is rare- seek out help via the Genetics department of your nearest children's hospital to find out which genetics specialists have a particular interest in her deletion.

In brief: Speech and Physical

Does your daughter have an Individualized Education Plan (IEP)? She may be eligible for school based physical and speech therapy.
Her genetic deletion is rare- seek out help via the Genetics department of your nearest children's hospital to find out which genetics specialists have a particular interest in her deletion.
Thank
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