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Does aortic root dilation associated with Ehlers-Danlos syndrome usually develop in childhood? Or can it first show up in adulthood?

3 doctors weighed in
Dr. Clarene Cress
Pediatrics
2 doctors agree

In brief: Unlikely

Although there are many different subtypes of Ehlers-Danlos syndrome, the overall incidence of aortic rd is less common than in Marfan's where it is thought to be about 80%.
The attached paper looked at the hypermotile subtype of EDS and found onset usually before age 14 and this seemed to stabilize in adulthood.

In brief: Unlikely

Although there are many different subtypes of Ehlers-Danlos syndrome, the overall incidence of aortic rd is less common than in Marfan's where it is thought to be about 80%.
The attached paper looked at the hypermotile subtype of EDS and found onset usually before age 14 and this seemed to stabilize in adulthood.
Dr. Clarene Cress
Dr. Clarene Cress
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