4 doctors weighed in:

I was born with cystic fibrosis. I'm now 35 and my lung function has gradually worsened the last years. I know that survival age is about 40 and I'm at peace with that. However, I still wonder: are there any recent findings about cystic fibrosis?

4 doctors weighed in
Dr. Amrita Dosanjh
Pediatrics - Pulmonology
3 doctors agree

In brief: Mgt

I would advise following your lung function closely with your pulmonary specialist, optimizing your nutrition, and treating any exacerbations with antibiotics and chest physiotherapy.
The use of DNAase has been shown to be effective. Some patients may benefit from treatments specifically targeted to their genotype. The CF foundation is another good resource for patients. Stay well.

In brief: Mgt

I would advise following your lung function closely with your pulmonary specialist, optimizing your nutrition, and treating any exacerbations with antibiotics and chest physiotherapy.
The use of DNAase has been shown to be effective. Some patients may benefit from treatments specifically targeted to their genotype. The CF foundation is another good resource for patients. Stay well.
Thank
Dr. Johanna Fricke
Pediatrics - Developmental & Behavioral

In brief: If you're 35, who's

22? Just curious.
On www.cff.org, scroll down to drug development & clinical trials for up-to-date info. Don't make your lifespan a self-fulfilling prophecy. During my cardiovascular surgery rotation in med school, I lost a 40-yr.-old patient needlessly. He'd never sought repair of his reparable Congenital Heart Disease because he'd been told at age 20 that it couldn't be fixed & he'd die at 40.

In brief: If you're 35, who's

22? Just curious.
On www.cff.org, scroll down to drug development & clinical trials for up-to-date info. Don't make your lifespan a self-fulfilling prophecy. During my cardiovascular surgery rotation in med school, I lost a 40-yr.-old patient needlessly. He'd never sought repair of his reparable Congenital Heart Disease because he'd been told at age 20 that it couldn't be fixed & he'd die at 40.
Thank
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