On www.cff.org, scroll down to drug development & clinical trials for up-to-date info. Don't make your lifespan a self-fulfilling prophecy. During my cardiovascular surgery
rotation in med school, I lost a 40-yr.-old patient needlessly. He'd never sought repair of his reparable Congenital Heart Disease because he'd been told at age 20 that it couldn't be fixed & he'd die at 40.