Related Questions

If I have Ehlers- Danlos syndrome, what should I use to stabilize my joints?

Individualize. Ehlers-Danlos ranges from trivial to very serious. If you need to ask, see about getting with a physician who specializes in rehab medicine, braces and so forth and learn about the field and decide what's right. Read more...

Am double jointed, long tongue, poor healing. Does this sound like ehlers-danlos syndrome?

Yes & other things. Joint hypermobility syndrome, marfan syndrome and ehlers-danlos syndrome can all present more or less in this fashon. Check with your doctor as each has other characteristis. Genetic testing can differentiate these. This is an important differentiation. Read more...

I have just been diagnosed with ehlers-danlos syndrome (joint cartilage) so should I stop playing sports?

Not completely. Your condition also is associated with hypermobilty of tendons and ligaments. While i think you should avoid contact sports, impulsive sports (tennis, basketball), you can bike, swim, do resistance training and keep your health in the best it can be. Read more...

I have just been diagnosed with ehlers-danlos syndrome (joint cartilage) should I play sports?

No contact type. I am sure you have enough talents that you wii be able to fullfii your competitive spirt in aother manner. You may do well with some non--contact sports. Read more...

Am going to start right away with this: long tongue, tall and thin, double jointed, flexible, heal poorly. Does this sound like ehlers-danlos syndrome?

Maybe! Marfans! Not. Could be that or marfan's or hypermobilty. Genetic testing will be definitive. Read more...
Marfan's Syndrome ? Your description is a little more like marfan's both are genetic syndromes or you could just be tall and unusually limber. Genetic testing would tell you for sure i recommend this as each have their own medical issues that need careful monitoring. Read more...

I must have have Ehlers-Danlos syndrome (9/9 Beighton score, SEVERE IBS, joint pain, ortho intolerance, etc) but waiting lists for specialists are 1+ years long. Any advice on getting help sooner?

Waiting time@MDs. If you have been told that the waiting time is over 1 year, find different specialist. There are lots of tertiary care center with specialists that can see you, depending on your location. Have your primary care MD help by calling the specialist, sometimes they can accommodate patients earlier this way. Read more...
See your physician! Please do not worry about waiting for one year to see a specialist. Just make an appointment to see your doctor. If you do not have one, go to a walking clinic. . Read more...
Natural therapies. Ehlers-danlos syndrome has no magical solution. Loose ligaments require well toned & strong-muscle compensations. The easiest form of physical exercise is aqua therapy, whereby water buoyancy negates weak muscles overwhelmed by gravity. Treatment w. non-toxic therapies of nutrition, herbs, massage, & yoga rounds out sphere of rational therapies. Prolotherapy might have place at therapeutic table. Read more...