2 doctors weighed in:

How serious can an AIP attack get? can it be fatal?

2 doctors weighed in
Dr. Ed Friedlander
Pathology
1 doctor agrees

In brief: Yes

Acute intermittent porphyria is often undiagnosed or misidentified as "emotional illness".
Managing it is mostly up to the patient, who needs to learn how to avoid triggers and how to use the often-hard-to-get, often-hard-to-used medications. In unusual cases, death is due to damage to the peripheral nervous system. But it's miserable, fatal or not.

In brief: Yes

Acute intermittent porphyria is often undiagnosed or misidentified as "emotional illness".
Managing it is mostly up to the patient, who needs to learn how to avoid triggers and how to use the often-hard-to-get, often-hard-to-used medications. In unusual cases, death is due to damage to the peripheral nervous system. But it's miserable, fatal or not.
Dr. Ed Friedlander
Dr. Ed Friedlander
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