13 doctors weighed in:

I was diagnosed with neurosarcoidosis after a CT scan. Also bronchioscope, no confirm. I believe cauda equina. How to test for this? 2 yrs with this.

13 doctors weighed in
Dr. Steven Machtinger
Internal Medicine - Allergy & Immunology
6 doctors agree

In brief: 2nd opinion time

Neurosarcoidosis is a complication of sarcoidosis.
Sarcoidosis almost always begins with lung involvement. You said you had bronchoscopy. Did you have a chest ct scan to rule-out lung involvement? You should. For diagnosis of neurosarcoidosis a ct scan showing a lesion of the cauda equina is inadequate. You should at least have a spinal tap & probably a brain & spine MRI scans. Good luck.

In brief: 2nd opinion time

Neurosarcoidosis is a complication of sarcoidosis.
Sarcoidosis almost always begins with lung involvement. You said you had bronchoscopy. Did you have a chest ct scan to rule-out lung involvement? You should. For diagnosis of neurosarcoidosis a ct scan showing a lesion of the cauda equina is inadequate. You should at least have a spinal tap & probably a brain & spine MRI scans. Good luck.
Dr. Steven Machtinger
Dr. Steven Machtinger
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Dr. Jack Mutnick
Internal Medicine - Allergy & Immunology
5 doctors agree

In brief: Help

Get into a neurologist who specializes in your condition(s)! it might take a bit of research and phone calls to find the right neurologist to help you, but it is better than just seeing a doctor, not getting any answers, then receiving a large bill in the mail.

In brief: Help

Get into a neurologist who specializes in your condition(s)! it might take a bit of research and phone calls to find the right neurologist to help you, but it is better than just seeing a doctor, not getting any answers, then receiving a large bill in the mail.
Dr. Jack Mutnick
Dr. Jack Mutnick
Thank
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