4 doctors weighed in:
17yrs chronic diarrhea, celiac and microscopic colitis. Various meds. On 6mp now & pure glutenfree diet. No improvement. Other remedies?
4 doctors weighed in

Dr. Amy Deeken
Pathology
1 doctor agrees
In brief: Refractory Celiac?
Refractory celiac disease is when symptoms of celiac disease return or are persistent even on a gluten free diet.
Patients should be evaluated by their gastroenterologist to make sure the symptoms are not related to unknown gluten exposure from "hidden gluten" or the early signs of intestinal lymphoma. Refractory celiac disease often shows t-cell gene rearrangement in the biopsy.

In brief: Refractory Celiac?
Refractory celiac disease is when symptoms of celiac disease return or are persistent even on a gluten free diet.
Patients should be evaluated by their gastroenterologist to make sure the symptoms are not related to unknown gluten exposure from "hidden gluten" or the early signs of intestinal lymphoma. Refractory celiac disease often shows t-cell gene rearrangement in the biopsy.
Dr. Amy Deeken
Dr. Amy Deeken
Thank
Dr. Arthur Heller
Internal Medicine - Gastroenterology
1 doctor agrees
In brief: Difficult problem
Be sure of the diagnoses; be strict with the diet; make sure there is nothing else going on (including small bowel lymphoma-complication of celiac); sometimes steroids can help.
Symptomatic rx with cholestyramine-nonspecific constipating effect (watch for vitamin deficiencies). Sometimes rx for bacterial overgrowth can help. Complex, need GI doc/center with much experience in this. 2nd opinion?

In brief: Difficult problem
Be sure of the diagnoses; be strict with the diet; make sure there is nothing else going on (including small bowel lymphoma-complication of celiac); sometimes steroids can help.
Symptomatic rx with cholestyramine-nonspecific constipating effect (watch for vitamin deficiencies). Sometimes rx for bacterial overgrowth can help. Complex, need GI doc/center with much experience in this. 2nd opinion?
Dr. Arthur Heller
Dr. Arthur Heller
Thank
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