12 doctors weighed in:

My 2 1/2 yr old daughter has a genetic disorder called vcfs (22q11.2 deletion syndrome) with this she has an IgA deficiency which has manifested as recurrent bronchitis. Whats a good website for info?

12 doctors weighed in
Dr. Johanna Fricke
Pediatrics - Developmental & Behavioral
5 doctors agree

In brief: The VCFS Educational

Foundation has webinars.
Their conference for parents and professionals is in my home town this year. I couldn't resist adding the iconic photo. If your child has adhd, as is very common in people with vcfs, just know that circus circus can be an overstimulating environment for any child....Or adult.

In brief: The VCFS Educational

Foundation has webinars.
Their conference for parents and professionals is in my home town this year. I couldn't resist adding the iconic photo. If your child has adhd, as is very common in people with vcfs, just know that circus circus can be an overstimulating environment for any child....Or adult.
Dr. Johanna Fricke
Dr. Johanna Fricke
Thank
Dr. James Henning
Anesthesiology
3 doctors agree

In brief: Have A Look...

http://www.vcfsfa.
org.au/pages/home.php http://www.Vcfsef.Org/about_vcfs/general_information.Html http://www.Orphandiseasenetwork.Org/di-george-syndrome-22q11ds-vcfs/.

In brief: Have A Look...

http://www.vcfsfa.
org.au/pages/home.php http://www.Vcfsef.Org/about_vcfs/general_information.Html http://www.Orphandiseasenetwork.Org/di-george-syndrome-22q11ds-vcfs/.
Dr. James Henning
Dr. James Henning
Thank
Dr. Ahmad M Hadied
Orthopedic Surgery
2 doctors agree

In brief: PLease see below

http://www.mayoclinic.com/health/digeorge-syndrome good luck.

In brief: PLease see below

http://www.mayoclinic.com/health/digeorge-syndrome good luck.
Dr. Ahmad M Hadied
Dr. Ahmad M Hadied
Thank
Dr. Ed Friedlander
Pathology
1 doctor agrees

In brief: Do better

Velocardiofacial syndrome and IgA deficiency run together more than they would by chance.
You will want to join a parents' group online for the vcfs; I have no first-hand knowledge of www.Vcfsef.Org but they look like they are on the level. The IgA deficiency will be less of a management problem, i'd predict. Good luck, and thanks for being proactive.

In brief: Do better

Velocardiofacial syndrome and IgA deficiency run together more than they would by chance.
You will want to join a parents' group online for the vcfs; I have no first-hand knowledge of www.Vcfsef.Org but they look like they are on the level. The IgA deficiency will be less of a management problem, i'd predict. Good luck, and thanks for being proactive.
Dr. Ed Friedlander
Dr. Ed Friedlander
Thank
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