9 doctors weighed in:

Is there a cure or treatment for neurofibromatosis?

9 doctors weighed in
Dr. Michael Fisher
Dermatology
2 doctors agree

In brief: Neurofibromatosis

There is no cure for neurofibromatosis and the goal of treatment is to relieve symptoms.
Painful cutaneous and subcutaneous tumors and those that occur on visible areas of the body may be removed surgically. Surgery also may be performed to remove schwannomas and nerve tissue tumors (neurofibromas) that cause pain, sensory loss, and loss of function.

In brief: Neurofibromatosis

There is no cure for neurofibromatosis and the goal of treatment is to relieve symptoms.
Painful cutaneous and subcutaneous tumors and those that occur on visible areas of the body may be removed surgically. Surgery also may be performed to remove schwannomas and nerve tissue tumors (neurofibromas) that cause pain, sensory loss, and loss of function.
Dr. Michael Fisher
Dr. Michael Fisher
Thank
Dr. Johanna Fricke
Pediatrics - Developmental & Behavioral
2 doctors agree

In brief: NF 1, from a gene

Mutation on chromosome 17, has highly variable medical & neurodevelopmental manifestations.
Nerve tumors form on/under skin, in brain & other areas of nervous system, & other parts of body. Specialists in genetics psychology, behavior/development, surgery, oncology and ophthalmology help patients with nf i. Learning disorders & adhd often occur. www.ctf.org has complete info & resources.

In brief: NF 1, from a gene

Mutation on chromosome 17, has highly variable medical & neurodevelopmental manifestations.
Nerve tumors form on/under skin, in brain & other areas of nervous system, & other parts of body. Specialists in genetics psychology, behavior/development, surgery, oncology and ophthalmology help patients with nf i. Learning disorders & adhd often occur. www.ctf.org has complete info & resources.
Dr. Johanna Fricke
Dr. Johanna Fricke
Thank
Dr. Lisa Hogan
Surgery
1 doctor agrees

In brief: No cure

Symptoms of neurofibromatosis are usually managed surgically, when possible.
At this point in time there is no other treatment or cure available.

In brief: No cure

Symptoms of neurofibromatosis are usually managed surgically, when possible.
At this point in time there is no other treatment or cure available.
Dr. Lisa Hogan
Dr. Lisa Hogan
Thank
Dr. Gerald Mandell
Nuclear Medicine

In brief: No

There is no cure for neurofibromatosis and goal of treatment is to relieve symptoms.
Painful cutaneous and subcutaneous tumors and those that occur on visible areas of the body may be removed surgically. Surgery also may be performed to remove schwannomas and nerve tissue tumors (neurofibromas) that cause pain, sensory loss, and loss of function.

In brief: No

There is no cure for neurofibromatosis and goal of treatment is to relieve symptoms.
Painful cutaneous and subcutaneous tumors and those that occur on visible areas of the body may be removed surgically. Surgery also may be performed to remove schwannomas and nerve tissue tumors (neurofibromas) that cause pain, sensory loss, and loss of function.
Dr. Gerald Mandell
Dr. Gerald Mandell
Thank
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