10 doctors weighed in:
I think I have wilson's syndrome, what do I do now?
10 doctors weighed in

Dr. Richard Roberts
Clinical Genetics
2 doctors agree
In brief: No enough info
if you have a sibling who has been diagnosedwith this condition, you need an evaluation By a physician knowledgeable in this rare autosomal recessive disorder like a metabolic or boochemical geneticist.

In brief: No enough info
if you have a sibling who has been diagnosedwith this condition, you need an evaluation By a physician knowledgeable in this rare autosomal recessive disorder like a metabolic or boochemical geneticist.
Dr. Richard Roberts
Dr. Richard Roberts
Thank
Dr. Ed Friedlander
Pathology
2 doctors agree
In brief: What do you mean?
Wilson's disease is a very serious disease of the liver. "Wilson's syndrome" is a diagnosis given only by "alternative" practitioners which has no basis in reality and whose discoverer did not even publish in a real medical journal about his "great discovery".
Well-intentioned people are urged to take their temperature and if it's low-normal or less, to self-diagnose. Don't fall for it.

In brief: What do you mean?
Wilson's disease is a very serious disease of the liver. "Wilson's syndrome" is a diagnosis given only by "alternative" practitioners which has no basis in reality and whose discoverer did not even publish in a real medical journal about his "great discovery".
Well-intentioned people are urged to take their temperature and if it's low-normal or less, to self-diagnose. Don't fall for it.
Dr. Ed Friedlander
Dr. Ed Friedlander
Thank
Dr. Jeffrey Crespin
Internal Medicine - Gastroenterology
2 doctors agree
In brief: See a hepatologist
A hepatologist is a liver doctor who should be able to confirm if you really do have wilsons.
Wilsons syndrome can easily be tested.You should first get a ceruloplasmin level followed by 24 hour urine copper. If these tests suggest wilsons, you would get a liver biopsy. Wilsons can easily be treated if one does not have cirrhosis. Patients often take zinc to reduce body copper levels.

In brief: See a hepatologist
A hepatologist is a liver doctor who should be able to confirm if you really do have wilsons.
Wilsons syndrome can easily be tested.You should first get a ceruloplasmin level followed by 24 hour urine copper. If these tests suggest wilsons, you would get a liver biopsy. Wilsons can easily be treated if one does not have cirrhosis. Patients often take zinc to reduce body copper levels.
Dr. Jeffrey Crespin
Dr. Jeffrey Crespin
Thank
Dr. Harold Peltan
Ophthalmology
In brief: See your doctor
See a doctor and report your concerns.
A doctor can do definitive tests to tell you if you have wilson's disease (copper accumulation) or some other ailment. Wilson’s (temperature) syndrome is an alternative medicine concept which is not recognized as a medical condition by mainstream medicine.

In brief: See your doctor
See a doctor and report your concerns.
A doctor can do definitive tests to tell you if you have wilson's disease (copper accumulation) or some other ailment. Wilson’s (temperature) syndrome is an alternative medicine concept which is not recognized as a medical condition by mainstream medicine.
Dr. Harold Peltan
Dr. Harold Peltan
Thank
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