7 doctors weighed in:
What do I need to talk to my doctor about as a parent of a disabled child?
7 doctors weighed in

Dr. Michael Amster
Pediatrics
3 doctors agree
In brief: Everything
Parents of a disabled child are going to know way more about medicine than they should.
They are also going to have a myriad of questions and concerns about things that may never even occur to the doctor to bring up, but might be extremely important, like logistics, mainstreaming in school, iep's, social issues, behavior training, potty training, and much more. Nothing, nothing, is off limits.

In brief: Everything
Parents of a disabled child are going to know way more about medicine than they should.
They are also going to have a myriad of questions and concerns about things that may never even occur to the doctor to bring up, but might be extremely important, like logistics, mainstreaming in school, iep's, social issues, behavior training, potty training, and much more. Nothing, nothing, is off limits.
Dr. Michael Amster
Dr. Michael Amster
Thank
2 comments
Dr. Judy Orton
Make it a practice to make a list of questions and concerns to discuss with your child's doctor(s) at every visit. Keep your own medical file to keep track of important diagnoses, test results, mess, etc - this will help facilitate care among the primary doc, specialists, therapists, teachers. Check in with the primary doc to make sure all involved has forwarded their reports - including school.
Dr. Charlene Sojico
Each child is different, may have the same disability but different needs. Whatever concerns you , bring it up for discussion, there is no limit at all!
Dr. Robert GalatzerLevy
Pediatrics - Psychiatry
1 doctor agrees
In brief: Lots
1) get a clear picture of the disability -- keep pressing until you understand what is going on.
2) learn what rehab options there are 3) discuss how you can manage your own stress. Often you will need to seek out other sources than the child's treating physician for this information but you will be best off and so will your child if you get it. Specific, detailed, understandable!

In brief: Lots
1) get a clear picture of the disability -- keep pressing until you understand what is going on.
2) learn what rehab options there are 3) discuss how you can manage your own stress. Often you will need to seek out other sources than the child's treating physician for this information but you will be best off and so will your child if you get it. Specific, detailed, understandable!
Dr. Robert GalatzerLevy
Dr. Robert GalatzerLevy
Thank
Dr. William Singer
Pediatrics - Neurology
In brief: Your feelings
It is important to talk to your doctor about your feelings about having a child who is disabled and how it is affecting your family.
In addition your should talk about how best to get services for your child.

In brief: Your feelings
It is important to talk to your doctor about your feelings about having a child who is disabled and how it is affecting your family.
In addition your should talk about how best to get services for your child.
Dr. William Singer
Dr. William Singer
Thank
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