Anyone have tips for dealing with primary ciliary dyskinesia (pcd)?

Get vaccinated. Vaccines protect against many major illnesses and are an important aspect of care for someone with pcd. The annual influenza vaccine is especially important. Pcd requires daily care to prevent lung infections and damage; I would strongly suggest that anyone with this condition be seen regularly by a pulmonologist for treatment and counseling.
Do my best. No one seems to be answering your question. The respiratory tract is lined with cilia. These are tiny hairs that collect debris and move mucous. If they do not move normally they are considered as dyskinetic. Patients with cystic fibrosis are prone to this. Also those with bad asthma and certain genetic defects of the airways. Good pulmonary clearance methods are necessary.

Related Questions

Anyone treated primary ciliary dyskinesia (pcd)?

Pulmonologists do. Pcd is diagnosed in both children & adults & they should be followed by a pediatric or adult pulmonologist who can help monitor their lung function & provide specific therapies to prevent lung damage in the long term. Most tertiary care centers would have either an adult or pediatric pulmonologist who has expertise in the management of patients with pcd. Talk to your doctor & see a lung specialist.

What's worse, primary ciliary dyskinesia (pcd) or asthma?

Depends. On your severity I believe. Both can cause serious illness in but PCD can cause problems in multiple organ systems, so in that sense, PCD may be considered a more severe disease in some, again depending on the severity of their disease.

What is primary ciliary dyskinesia?

Cilia don't work. .. Primary ciliary dyskinesia is a disorder of cilia (moving hair-like structures on the surface of cells) causing chronic respiratory tract infections, sometimes abnormally positioned internal organs, and sometimes difficulty having children (infertility). Men with sperm that don't swim can be treated with icsi; women may have abnormal function of their fallopian tubes. Http://1.usa. Gov/u4tuug.

What exactly is primary ciliary dyskinesia?

Cilia don't work. .. Primary ciliary dyskinesia is a disorder of cilia (moving hair-like structures on the surface of cells) causing chronic respiratory tract infections, sometimes abnormally positioned internal organs, and sometimes difficulty having children (infertility). Men with sperm that don't swim can be treated with icsi; women may have abnormal function of their fallopian tubes. Http://1.usa. Gov/u4tuug.

Anyone out there treat primary ciliary dyskinesia?

Pulmonologist. Your best bet on getting treatment is to find a pulmonologist at a tertiary care center who has experience with treating this disorder.

What is it like to live with primary ciliary dyskinesia?

Chronic lung disease. Primary ciliary dyskinesia causes frequent ear, sinus & lung infections for which several preventive approaches can be utilized. Using airway clearance therapies regularly will prevent buildup of mucus in the lungs & prevent long term damage (bronchiectasis) from occurring. Frequent use of antibiotics is a necessity for most PCD patients. With optimal care, good long term outcomes can be achieved.

Does anyone have cure for primary ciliary dyskinesia?

No. This is a genetic disorder and there is no cure at this time. The treatments available all target trying to prevent infection from by the dysfunctional cilia.

Primary ciliary dyskinesia sounds scarey. What is it?

Gentetic Disorder. Pcd is a genetic disorder. The cilia are tiny hair-like structures that line the airways and help to clear mucus and other debris. Cilia are also present in the nose, sinuses, and parts of the upper airway. With this disorder, the cilia do not function properly and patients are predisposed to chronic ear, lung, & sinus infections.

What goes wrong with the protein that leads to primary ciliary dyskinesia?

Structural defect. There are 11 genetic mutations known to cause PCD & they all affect the structure of cilia (or tiny hair like structures on top of cells in various parts of our body) in different ways. The result is disordered/absent ciliary movement leading to problems with clearing infectious bugs that are normally eliminated by this mucociliary escalator, esp in lungs. Other effects are on body cells also occu.