Jane, one of the best things you can do is to explore the resources available to you, so thank you for asking! many states and regions in the U.
S. Have organized sickle cell groups that help educate and support sickle cell patients and their families. Of course, also ask your baby's future doctor. Try this national group as a stepping stone: http://www.Sicklecelldisease.Org/index.Cfm?Page=chapters.