Related Questions

Does lung transplant improve quality of life for people with cystic fibrosis?

Yes. Improvement in quality of life after double lung transplant can be dramatic. Most patients come off of oxygen and have much better quality of life by 6 months after transplant. The improvement after lung transplant can last a long time (years). Read more...
Sometimes. This is a controversial question, and my answer is on one side of the debate. People with CF should be closely followed and treated with a goal of maximizing quality of life. When the illness becomes severe enough (repeated infections, hospitalizations, poor exercise tolerance), transplant should be considered... But not everyone with poor lung function will benefit. Read t. Liou, md's articles. Read more...

Will a lung transplant help with cystic fibrosis?

Yes. A lung transplant will help with the pulmonary problems of cf, but not with the other systemic problems of cf. Lung tx can increase the longevity and quality of life, but at the expense of many medications and visits to the doctor. As the lungs get damage from cf, one may need a lung transplant. Your doctors will be able to guide you on the timing for a lung transplant. Read more...

How can you expect life to bevfor a person with cystic fibrosis after a lung transplant?

Varies. Not everyone has a similar experience post lung transplant. In general, respiratory symptoms and breathing, overall improve, and people are able to do activities they were not able to do before as easily. Not all respiratory symptoms go away. Various medications are required and close follow up is mandatory. Survival after lung transplantation is ~ 50% at 5 years. Read more...
Varies. Depending on how good the match was, the quality of the donated lungs, the fit between the lungs and the patient, and their tolerance for and compliance with the transplant drug regimen, life can be very good or very short. Additionally, some luck is needed - avoiding chronic infections with aspirgillus, cmv, etc is always an issue with transplantation, and it may be more difficult in cf. Read more...

For how long do people with end stage cystic fibrosis usually survive after a lung transplant?

Wow, too many... ...individual variables to provide a general answer, including how much the transplant recipient commits to living the lifestyle needed to keep the new lungs healthy. However, the Cystic Fibrosis Foundation offers some advice: https://www.cff.org/Life-With-CF/Treatments-and-Therapies/Lung-Transplantation/ Read more...
Long enough to. have a meaningful and purposeful life. The statistics show that over 67% of people who receive a lung transplant are alive and well five years later and more than half of those ten years later. Because the lungs do not carry the mutation, all lung symptoms are gone. You would still have the effect of CF in other organs, however so would still work with the CF team. Read this https://www.cff.org/CF-Community-Blog/Posts/2017/Finding-New-Purpose-After-Getting-New-Lungs/ Read more...

If I have cystic fibrosis and get a lung transplant, will the disease eventually invade my new lungs?

No. The risk to the transplanted lungs are infection from bacteria left over from the old lungs, and acute and chronic rejection of the new lung by the body. Cystic fibrosis is a defect that is limited to the old lungs. Read more...
It can. Lung transplant for CF is an important life prolonging therapy but it exchanges one set of problems for another. After transplant, there is risk of rejection of the transplanted lungs by one's own immune system requiring use of strong meds that suppress your immune system which then increases your risk of serious infections. There are many facets to this - talk to your CF dr to discuss pros/cons. Read more...
Trachea still CF. The graft of new lungs does leave a trachea that still has the CF defect. This can serve as a source of infection to the new lungs. The new transplanted lungs though will not have CF disease. Read more...

Is lung transplant really worthwhile for cystic fibrosis? I've heard that less than 1% benefit from the procedure?

Yes it is. Lung transplant for end-stage CF lung disease is worthwhile, the results and survival rates are encouraging, but please ask experts in CF accredited centers who can better inform you about patient selection criteria, wish you wellness. Read more...

What can I expect when I have cystic fibrosis and getting double lung transplant?

IMPROVED STATUS. Cystic fibrosis is a genetic disorder that destroys the lung. Double lung transplant will improve the life span and lifestyle of a pt with advanced cystic fibrosis. Read more...
Complex. The management of lung transplantation recipients involves being very compliant with a new daily routine. The medications help prevent rejection and infection of the transplanted lungs. Close follow up visits will include lung function testing. Your CF pulmonary regimen will be replaced by a new regimen. The five year survival is around 55%. I hope that this information helps. Read more...

How long would someone with cystic fibrosis be expected to live after a double lung transplant?

Averages. At one year 90 percent of CF patients are alive after lung transplant; the number falls to around 60% at 5 years and 10-15% at 10 years. Double lung transplant patients tend to do better than single lung transplant recipients (probably because they have more reserve if they develop rejection). Read more...
New Drugs . With the development of new immunosuppressive drugs and regimens to manage rejection, doctors are hopeful that life expectancy may improve. The ishlt.Org has some information that may be helpful to you as well. Read more...