See a Phlebologist. A phlebologist or surgeon may be the specialist to see. There, however are not many physicians even in those specialties who are well trained in caring for this problem.
Lymphedema. Vascular surgeon would be the best option for evaluation and treatment options.
Possibly.. A microsurgeon.. http://blog.winniepalmerhospital.com/live-surgery-watch-drs-klein-lee-and-feiner-perform-vascular-lymph-node-transfer-vlntx/.
Ideally ... You should see a lyphedema specialist. Unfortunately, there are very few around. The next best thing would be to see a vein specialist, vascular medicine specialist, vascular surgeon, and internist who has a special interest in lymphedema. What would be most helpful would be to hook up with a lymphedema therapist and a lymphedema support group.