Myelofibrosis. A blood disorder which usually affects the bone marrow causing anemia and low counts, and cause spleen enlargement and other constitutional symptoms like weight loss, malaise, risk of infection and bleeding. It can lead to leukemia or a bone marrow failure syndrome. Bone marrow transplant in young patients can be considered. Jakafi (ruxolitinib) is a new drug approved to treat symptoms of myelofibrosis.
My haemotologist told me I have around 5 years before I die from myelofibrosis. What can I expect? Am already in wheelchair as I fafaint when walking.
None of us truly. knows when we will die but you have some information from your doc. Many will die before you so please make the very best to the time you have. Try to use your suffering to help others somehow, perhaps on line. Peace and good health. Read more...