4 doctors weighed in:

Can neurofibromatosis kill you?

4 doctors weighed in
1 doctor agrees

In brief: No and yes

Depending on the location eg sudden hemorrhage in tumor in brain-rare possibility.
Continuous non treatable seizure. It is not like heart attack.

In brief: No and yes

Depending on the location eg sudden hemorrhage in tumor in brain-rare possibility.
Continuous non treatable seizure. It is not like heart attack.
Thank
Dr. Gerald Mandell
Nuclear Medicine

In brief: Depends

Neurofibromatosis comes in many forms and involvement.
If the neurofibromas affect critical areas of function. Death is possible. Forinstance if tumor becomes so enlarged that compresses airway or blood vessels supplying blood to brain or other vital organs. In rare insances malikgnent degeneration of neurofibromas into neuofibrosarcomas can occur. Some patients develop other lethal tumors..

In brief: Depends

Neurofibromatosis comes in many forms and involvement.
If the neurofibromas affect critical areas of function. Death is possible. Forinstance if tumor becomes so enlarged that compresses airway or blood vessels supplying blood to brain or other vital organs. In rare insances malikgnent degeneration of neurofibromas into neuofibrosarcomas can occur. Some patients develop other lethal tumors..
Thank