6 doctors weighed in:

What is known as intractable epilepsy?

6 doctors weighed in
Dr. Djamchid Lotfi
Neurology
2 doctors agree

In brief: Untreatable

About 60% of seizures are controlled by one medication 20% with more than one med, 10% with surgery, but fewer than 10% do not respond to any measures they are termed intractable, with recent advances in surgery, vagal nerve stimulation, special diets etc this number is shrinking!

In brief: Untreatable

About 60% of seizures are controlled by one medication 20% with more than one med, 10% with surgery, but fewer than 10% do not respond to any measures they are termed intractable, with recent advances in surgery, vagal nerve stimulation, special diets etc this number is shrinking!
Dr. Djamchid Lotfi
Dr. Djamchid Lotfi
Thank
Dr. William Goldie
Pediatrics - Neurology
1 doctor agrees

In brief: Difficult to control

Most epilepsy is easy to control.
At least 60% of epileptic patients can be controlled with just one medication. Another 30% take more complex regimen to control. At least 10% of epilepsy patients are not fully controlled even with multiple medications, surgeries, implanted devices, etc. These are considered as intractable. Most epilepsy centers have specific clinics just for these patients.

In brief: Difficult to control

Most epilepsy is easy to control.
At least 60% of epileptic patients can be controlled with just one medication. Another 30% take more complex regimen to control. At least 10% of epilepsy patients are not fully controlled even with multiple medications, surgeries, implanted devices, etc. These are considered as intractable. Most epilepsy centers have specific clinics just for these patients.
Dr. William Goldie
Dr. William Goldie
Thank
Dr. Diane Stein
Pediatrics - Neurology

In brief: Intractable epilepsy

There is so much information on intractable epilepsy - every year we learn more.
There are some wonderful support group websites with information: epilepsy.com youngepilepsy.org.uk. epilepsysociety.org.uk and some where you can find a doctor who specializes American Epilepsy Society is: AESnet.org

In brief: Intractable epilepsy

There is so much information on intractable epilepsy - every year we learn more.
There are some wonderful support group websites with information: epilepsy.com youngepilepsy.org.uk. epilepsysociety.org.uk and some where you can find a doctor who specializes American Epilepsy Society is: AESnet.org
Dr. Diane Stein
Dr. Diane Stein
Thank
Dr. Andrew Reeves
Neurology

In brief: Not controlled by me

Epilepsy which cannot be (or is not) adequately controlled by meds.
Typically we use this label after someone has not adequately responded to good trials of 4+ anti seizure meds.

In brief: Not controlled by me

Epilepsy which cannot be (or is not) adequately controlled by meds.
Typically we use this label after someone has not adequately responded to good trials of 4+ anti seizure meds.
Dr. Andrew Reeves
Dr. Andrew Reeves
Thank
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