Does anyone out there have charcot marie tooth?

My friend does. My childhood friend does. He was diagnosed at a young age. As children he was much taller than all of us. He exhibited the telling signs of high arches and hammer toe. His fingers are permanently bent inward. He has had multiple surgeries and pushes through life. He is 51 years of age and still works full time! I am very proud of my friend.

Related Questions

If you have charcot marie tooth can you feel it?

Yes. This inherited disease has many observable symptoms. It is well reviewed at: http://www.Ncbi.Nlm.Nih.Gov/pubmedhealth/pmh0001741/ i recommend if you think you may have this disease to contact your md for a proper evaluation and diagnosis. Read more...

What positive things can people who have charcot marie tooth do?

CMT. As with most degenerative diseases, solutions must often times be dynamic. Modifying the consistency of foods so that you may chew them easily, taking vitamin supplements that promote muscle and tissue strength, visiting a physical therapist familiar with the head and neck musculature and consider visiting your dentist more frequently to keep your teeth and soft tissue in optimal health. Read more...

I have charcot-marie-tooth disease. Is there any thing I can do to slow progression?

Non Medicaly. There's no cure for charcot-marie-tooth disease. However, some treatments can help you manage its signs and symptoms. Medications for pain and ifection. Physical therapy occupitional therapy orthopedic devices surgery. Read more...
Reference Sites. http://www.nhs.uk/conditions/charcot-marie-tooth-disease/pages/treatment.aspx and http://health.Nytimes.Com/health/guides/disease/charcot-marie-tooth-disease/overview.Html. Read more...

I have charcot marie tooth disease can I benefit from taking creatine monohydrate?

Management of CMT. Good day; Better to try to maintain activity, movement, muscle strength and flexibility. Suggest physical therapy and moderate activity. Try a physiotherapist and plan an exercise program. Orthotic devices may help; never had patient with CMT, but medications not very helpful. Consider an appointment with a physiatrist! Read more...
Yes, recommended. creatine can help strengthen the weakened muscles of people with muscular dystrophy. Read more...

I have charcot marie tooth disease and have had breathing problems and sweat a lot. Is this normal with cmt?

Maybe. Cmt is a spectrum of disorders that generally manifest as peripheral motor & sensory nerve problems. While some types can affect breathing, they usually manifest at a young age. In adults CMT usually affects leg & arm nerves/muscles more & is unlikely to cause sweating. Sweating may be a side effect of a medication. I would get your breathing checked out to make sure it's not something else. Read more...
Yes. For more information: www.ninds.nsh.gov 1800 352 9424 muscular dysetrophy assoc. www.mda.org www.Cmtana.Org. Read more...
Yes. Cmt affects both the sensory & motor nerves. Often patients experience difficulty walking, breathing, talking, & often have difficulty with regulation of skin temperature. Read more...