7 doctors weighed in:

I was wondering if anyone knows anything about goldenhar syndrome survival?

7 doctors weighed in
Dr. Johanna Fricke
Pediatrics - Developmental & Behavioral
4 doctors agree

In brief: Depends on

The presence of serious congenital heart or kidney defects, narrowing of the ateries to the kidneys causing high blood pressure, vertebral abnormalities causing severe scoliosis that can compromise lung function.
These are seen in the most severe cases. Early detection & medical or surgical treatment of these associated problems greatly reduce morbidity ( illness) & mortality.

In brief: Depends on

The presence of serious congenital heart or kidney defects, narrowing of the ateries to the kidneys causing high blood pressure, vertebral abnormalities causing severe scoliosis that can compromise lung function.
These are seen in the most severe cases. Early detection & medical or surgical treatment of these associated problems greatly reduce morbidity ( illness) & mortality.
Dr. Johanna Fricke
Dr. Johanna Fricke
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Dr. Troy Reyna
Surgery - Pediatric
2 doctors agree

In brief: Check site

Goldenharsyndrome.Org.

In brief: Check site

Goldenharsyndrome.Org.
Dr. Troy Reyna
Dr. Troy Reyna
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In brief: See below

Their life expectancy is not affected.

In brief: See below

Their life expectancy is not affected.
Dr. Anthony LaBarbera
Dr. Anthony LaBarbera
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