My newborn son has tetralogy of fallot which will require open heart surgery. I am so scared. Any advice?

TOF. Tetralogy of fallot is a fairly common congenital heart defect. It requires surgery in infancy. Most children do fine, and can play with their friends. Often a second surgery is required as a teen to replace the pulmonary valve. Although competitive sports are generally prohibited, they can work, and have children. Lifelong cardiac follow-up is essential.
Visit the cardiac . Nicu where he'll be recovering to familiarize yourself with the sights & sounds of tubes, lines & monitors that will insure your baby's safety. Get an electric breast pump. Talk to the nurses about storing breast milk, your sleeping arrangements, & sterilizing " blankies" & toys from home. Visit parents & children who had similar surgeries. Call on your support system to remain calm & positive.
Good results. One of the "blue baby " etiologies of the 1940s. Long track record with correction and good life style. Does run in families so check any grandkids early.
TETRALOGY OF FALLOT. If your son is having a lot of cyanosis and very symptomatic of tet which are severe cyanosis and problem breathing, operation for uncomplicated cases are done after 3-4 months of age and mortality rate is only less than 3percent. If untreated 55 percent grow up to 10 years old. So , there's hope for your son. Please ask your cardiologist.Good luck!

Related Questions

My 11 day old baby, has tetralogy of fallot, a heart defect, will this require open heart surgery?

Yes. Tetralogy of fallot is a serious congenital heart defect. There are four related abnormalities in typical tetralogy of fallot: ventricular septal defect, overriding aorta, subpulmonic stenosis, and right ventricular hypertrophy. Successful therapy always requires at least one heart surgery. At surgery, the vsd will be closed and the obstruction to pulmonary blood flow will be relieved. Read more...
Definitely. Total correction will be advised. Need to go to cleveland or columbus. Your pediatric cardiac surgeon and pediatric cardiologist will advise about timing and if staging necessary. Depending on the severity of the right ventricular obstruction and pulmonary artery and valve status, timing of procedure will be advised. Read more...

What are symptoms of PTSD? My son had a very close call with his open heart surgery and almost died. One year later I still have horrible flashbacks.

Could be PTSD. These flashbacks could be part of PTSD. More important than naming the exact diagnosis would be getting treatment. There are various forms of psychotherapy ,sometimes with medication, that can be very helpful. Treatment works. Read more...

Could being born with a heart defect that require open heart surgery cause mental retardation?

Complex issue. Kids who have a normal intellect at birth tend to lag far behind their age equivalent peers on academic progress if they have complex congenital heart disease, this disparity tends to increase with increased time for hospital care and away from school. For others, the chd is just one parameter of a genetic or chromosome disorder that has reduced intellectual abilities to start with. Read more...

Does a dilated right ventricle ever require open heart surgery? If not, can a person live normally & actively with one? Cause of dilation is unknown.

Not usually. There are many possible causes of rv dilatation, including lung disease, pulm hypertension, sleep apnea and tricuspid regurgitation (leaky valve). Depending on the cause most people will live normally. The rv can be hard to judge on echocardiogram, and sometimes an rv might seem dilated due to technical artifact but actually be normal. Please continue close f/u with your md. Read more...
It depends. It depends on the cause of the dilation, the function of the heart (including the left side), how long it has been going on, and the symptoms of the patient. Read more...

My baby girl has tetralogy of fallot. Is there anyway to survive without having heart surgery?

TETRALOGY OF FALLOT. Mortality rate is less than 3 percent for uncomplicated cases. For untreated patients, survival rates are 55 percent at 5years and 30 percent at 10 years. Read more...
No. Patients with tetralogy of fallot are not expected to survive to adulthood without surgery. Surgery is effective, and has a low mortality rate. Read more...
As scary as it is. I can tell you as a grandparent of a child who had open heart surgery at 2 days of age for complex cyanotic congenital heart disease, that whatever the complications of surgery, your child has the best chance of a long and happy life if it is done. Gather your support team, meet parents who have been through this and find a a center that has all the specialists your child needs. You can do this. Read more...