My baby girl has tetralogy of fallot. Is there anyway to survive without having heart surgery?

As scary as it is. I can tell you as a grandparent of a child who had open heart surgery at 2 days of age for complex cyanotic congenital heart disease, that whatever the complications of surgery, your child has the best chance of a long and happy life if it is done. Gather your support team, meet parents who have been through this and find a a center that has all the specialists your child needs. You can do this.
No. Patients with tetralogy of fallot are not expected to survive to adulthood without surgery. Surgery is effective, and has a low mortality rate.
TETRALOGY OF FALLOT. Mortality rate is less than 3 percent for uncomplicated cases. For untreated patients, survival rates are 55 percent at 5years and 30 percent at 10 years.

Related Questions

My 11 day old baby, has tetralogy of fallot, a heart defect, will this require open heart surgery?

Yes. Tetralogy of fallot is a serious congenital heart defect. There are four related abnormalities in typical tetralogy of fallot: ventricular septal defect, overriding aorta, subpulmonic stenosis, and right ventricular hypertrophy. Successful therapy always requires at least one heart surgery. At surgery, the vsd will be closed and the obstruction to pulmonary blood flow will be relieved.
Definitely. Total correction will be advised. Need to go to cleveland or columbus. Your pediatric cardiac surgeon and pediatric cardiologist will advise about timing and if staging necessary. Depending on the severity of the right ventricular obstruction and pulmonary artery and valve status, timing of procedure will be advised.

My newborn son has tetralogy of fallot which will require open heart surgery. I am so scared. Any advice?

TETRALOGY OF FALLOT. If your son is having a lot of cyanosis and very symptomatic of tet which are severe cyanosis and problem breathing, operation for uncomplicated cases are done after 3-4 months of age and mortality rate is only less than 3percent. If untreated 55 percent grow up to 10 years old. So, there's hope for your son. Please ask your cardiologist. Good luck!
Good results. One of the "blue baby " etiologies of the 1940s. Long track record with correction and good life style. Does run in families so check any grandkids early.
TOF. Tetralogy of fallot is a fairly common congenital heart defect. It requires surgery in infancy. Most children do fine, and can play with their friends. Often a second surgery is required as a teen to replace the pulmonary valve. Although competitive sports are generally prohibited, they can work, and have children. Lifelong cardiac follow-up is essential.
Visit the cardiac. Nicu where he'll be recovering to familiarize yourself with the sights & sounds of tubes, lines & monitors that will insure your baby's safety. Get an electric breast pump. Talk to the nurses about storing breast milk, your sleeping arrangements, & sterilizing " blankies" & toys from home. Visit parents & children who had similar surgeries. Call on your support system to remain calm & positive.

What is open heart surgery like for an infant or a toddler?

Rough. Well surgery on a small child is technically challenging to the surgeon. It would ordinarily take several hours and the recovery several weeks or even months. That said, children and infants have a great ability to recuperate even from major surgery.
If 9 mos or >. Parents can tour cardiac picu/ward pre-op & meet support staff, including play therapists. At 9 mos. Developmental age & up, a child has " affect matching, " becoming more upset during painful procedures if parents look upset. Also, having implicit memory means a child can develop ptsd. Modify behavioral regression by maintaining discipline & routine. Bring familiar hard, washable toys & books.
Depends. This depends on the heart lesion. Many forms of heart disease are now treated successfully with surgery. In those cases, the open heart surgery is very well tolerated with the child being home in 1-2 weeks and recovering well. If the heart lesion is very complicated, then the experience can be different. Please discuss this with your child's cardiologist to learn their specific issues.

What is open heart surgery like for an infant? Do they feel pain?

No pain in surgery. Most of the major centers of excellence will employ a multidiscipllinary team approach. Innovative techniques will be utilized to ensure comfort, minimize blood loss, ensure perfusion to the brain, and focused cooperation/communication with all cardiac surgical team members.

How does to take to fully recover after open heart surgery on an infant?

Varies. As with any surgery, this varies. It would depend on the exact surgery required as well as whether there are any complciations. Usually it would involve one to two weeks in the hospital and four to eight weeks at home. It also depends on what you mean by "recovery." the chest could be sore for a much longer period for instance.
Baby hearts. Typically, kids recover more quickly after heart surgery than adults. It's important, though, to consider what exactly has been fixed with the operation. There are some surgeries on kids that require multiple steps to complete. What that means is that the child may not be completely repaired after the first procedure.
Stages. "full" recovery takes months. But I typically think of this in stages. The child is usually hospitalized ~10-14 days. Then the major portion of the recovery is complete by ~2 months (i.e. Home for ~6-8 weeks). But it will take another few months for the sternum to completely heal, etc.

How long is the recovery time following open heart surgery on an infant?

Varies. It depends on the condition of the child prior to surgery, as well as the underlying condition, and the procedure done. The more complicated the procedure, the longer the recovery.
Variable. Less complex surgery at 2-4 months of age may require a week or so in the hospital. Complex congenital heart defects requiring surgery in the first few days may result in several weeks or longer in the hospital. It really varies a great deal depending upon the diagnosis, as well as other complicating medical conditions.