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I have just been told I have von hippel-lindau disease. What? Why? How did I get it?
2 doctors weighed in

Dr. Michael Fisher
Dermatology
1 doctor agrees
In brief: Von Hippel-Lindau
Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body.
Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life.

In brief: Von Hippel-Lindau
Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body.
Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life.
Dr. Michael Fisher
Dr. Michael Fisher
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