4 doctors weighed in:
What do you do when you know more about your disease (sle) than most doctors you've seen?
4 doctors weighed in

Dr. Ed Friedlander
Pathology
1 doctor agrees
In brief: Be proud
It is common today for a patient with a chronic disease, especially one as difficult and cruel as lupus, to know more about it than the vast majority of physicians.
The era of physician as all-knowing expert has given way to that of guide and partner in managing your illness. In turn, you can share your knowledge and experience with others on the many lupus blogs and support groups.

In brief: Be proud
It is common today for a patient with a chronic disease, especially one as difficult and cruel as lupus, to know more about it than the vast majority of physicians.
The era of physician as all-knowing expert has given way to that of guide and partner in managing your illness. In turn, you can share your knowledge and experience with others on the many lupus blogs and support groups.
Dr. Ed Friedlander
Dr. Ed Friedlander
Thank
Dr. John Goldman
Internal Medicine - Rheumatology
1 doctor agrees
In brief: Find another
Find another doctor - see a rheuamtologist.

In brief: Find another
Find another doctor - see a rheuamtologist.
Dr. John Goldman
Dr. John Goldman
Thank
Dr. Vance Harris
Family Medicine
1 doctor agrees
In brief: Lupus management
Be grateful for the internet and access to information today.
Try to get referred to a specialist to sees a lot of people with lupus. That's a hard disease to manage in some people.

In brief: Lupus management
Be grateful for the internet and access to information today.
Try to get referred to a specialist to sees a lot of people with lupus. That's a hard disease to manage in some people.
Dr. Vance Harris
Dr. Vance Harris
Thank
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