What do you do when you know more about your disease (sle) than most doctors you've seen?

Be proud. It is common today for a patient with a chronic disease, especially one as difficult and cruel as lupus, to know more about it than the vast majority of physicians. The era of physician as all-knowing expert has given way to that of guide and partner in managing your illness. In turn, you can share your knowledge and experience with others on the many lupus blogs and support groups.
Lupus management. Be grateful for the internet and access to information today. Try to get referred to a specialist to sees a lot of people with lupus. That's a hard disease to manage in some people.