ILD research. Interstitial lung disease is a general term for a group of disorders that affect the area of the lung that supports our alveoli - or air sacks. There are many causes some of which are described on wikipedia (http://en. Wikipedia. Org/wiki/interstitial_lung_disease). You can find out what clinical trials are being done by searching this web site: http://clinicaltrials. Gov/.
Check resources. This group of rare childhood interstitial lung diseases encompasses many different conditions. Go to http://www. Nih. Gov/health/clinicaltrials/findingatrial. Htm or http://www. Child-foundation. Com/ for more info or to contact a researcher in this field.
A lot can be done. Children's interstitial lung disease is rare & their treatment is best managed by pediatric pulmonologists at tertiary care centers that are experienced with the diagnosis & management of these rare conditions. To promote awareness, organizing lectures and seminars for the general population & medical community would be thebest way to get the word out. Also promoting research would help find cures.
Not much. Ild/pulm fibrosis is a progressive destruction of lung architecture resulting in progressive shortness of breath. All therapy tried to date has not provided much improvement. Oxygen and exercise while awaiting lung transplant is a current management option. The mortality of ipf is on the order of less than 5 yr after dx.