I have neurofibromatosis. What should I do?

Get information. http://www.ninds.nih.gov/disorders/neurofibromatosis/detail_neurofibromatosis.htm This is website with a lot of accurate information,
Neurofibromas . See your physician but this may not be a serious problem for you. This is not cancer but it does affect your nervous system depending on the location of the neurofibromas .