Chronic Illness. Progress in management has improved the quality of life for CF patients but it doesn't take away the basic vulnerabilities of the illness. In its worst forms, the illness shuts down production of enzymes that permit digestion of food & creates excessive mucous in the lungs that sets them up for deadly pneumonia & lung scaring. At some point, one of the complications will end their life.
Bad disease. Progress being made. See cff. Org.
Unknown. If you ask many experts they will tell you statistics based on large populations, when you look at an individual its harder to predict. As long as the person takes good care of their diabetes and takes all the medicines for cystic fibrosis and sees the doctor frequently at any sign of infection then the person can live a very long life.
Depends. Without a full exam and review of medical records and history of infections secondary to CF would be remiss in trying to become an actuarial. Go see a pulmonologist and discuss the options and likely outcomes.
Depends. The life expectancy for a cystic fibrosis (CF) patient depends on a variety of factors. However, in the U.S., the average life expectancy is between 30-40 years of age.
Let try to help. About 1, 000 new cases of cystic fibrosis are diagnosed each year. More than 70% of patients are diagnosed by age two. More than 45% of the CF patient population is age 18 or older. The predicted median age of survival for a person with CF is in the late 30s.
Let try to explain. Gene therapy has been explored as a potential cure for cystic fibrosis. Ideally, gene therapy attempts to place a normal copy of the cftr gene into affected cells. Transferring the normal cftr gene into the affected epithelium cells would result in the production of functional cftr in all target cells, without adverse reactions or an inflammation response. Good luck thanks.
Depends... There is no way to accurately predict how long a person with cystic fibrosis will live, as many different factors affect a person’s health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of cf, while others can have moderate or severe. In 2009, the median predicted age of survival was in the mid-30s.
Median is 5.5 yrs. That being said, population statistics can't be applied to individuals. How well the surgery went, the match characteristics, how well oh avoid infection, your fitness prior to transplant, how well you tolerate the transplant regimen, etc all effect your quality of life and longevity.
5 to 10 years. 5 year survival after double lung transplant occurs in 80% of people with cf. 10 year survival occurs in 50% of people with CF who have a double lung transplant and therefore is the average life expectancy. Regular medical care to manage episodes of rejection and infection in the transplanted lungs are critical to achieving a good outcome.
Not very close! Good morning, patients with cystic fibrosis have many difficulties due to recurrent infections and many visits to doctors. Things have changed recently with an aggressive treatment approach provided centers with specialty clinics for management of cf., yet it will far from being close to having a life similar to one without cf. Follow the instructions of the team for the best possible quality.
Depends on test. Depending on the original test that was performed, it is unlikely that a diagnosis of CF will be made later in life. Most of the testing that is done today is highly accurate. If you are referring to yourself, at age 31, if the diagnosis of CF has not yet been made, and you have been relatively healthy all of your life, I would say it is unlikely you have it.