Dysautonomia. Dysautonomia is fairly common in many patients with EDS, which could perhaps explain the numbness and tingling. Mechanism isn't exactly clear but is probably related to some sort of neuropathy or sudomotor dysfunction. However could also be an unrelated carpal tunnel disorder or problem in neck. Followup with Neurology to find out. Hypermobility in and of itself should not cause these problems.
Ehler danlos syndrom. Yes you can have numbness and pain of the hands because of hyperextention and frequent subluxations of your fingers.
I have Ehlers Danlos Syndrome and I experience cold hands and feet, tingling and small muscle spasms. Could it all be linked to the Ehlers Danlos?
Unlikely. Look for another cause. You may not find it. Keep them warm. Best wishes.
Dysautonomia. Dysautonomia is fairly common in many patients diagnosed with EDS, which could perhaps explain the cold hands/feet and tingling. Mechanism isn't exactly clear but is probably related to some sort of underlying neuropathy or sudomotor dysfunction. Muscle spasms (I assume meaning twitching) is probably more related to stress, anxiety, fatigue, etc. EMG and autonomic testing would be helpful.
Usually. Only. Severe disease affects intestinal vessels.
NOT. Generally..... this syndrome is inherited whereas a elevated ANA indicates an ACQUIRED rheumatic disorder and a complete rheumatological evaluation is indicated! Hope this is helpful Dr Z.
I have severe ehlers-danlos syndrome. Salma has worked for. Subluxed muscle spasms and past. Baclofen etc only cause respiratory problems no muscl?
??! What's your question.
Genetics. Ehlers-danlos is a genetic condition. There are no other known causes.
If I happened to have thin, translucent skin that was caused by vascular Ehlers-Danlos syndrome, would my skin have been that way since I was a child?
May occur. The thin skin is part of Ehlers-Danlos. It is called cutest Lexus. However as we mature there can be increased thinning. Part of it also depends on the type of Ehlers-Danlos you as there are many genetics subtypes.
I have ehlers danlos syndrome and was wondering if a bone marrow transplant can cure the defects that cause my improper collagen I have been in constant excruciating pain for 15 years and pain meds do not help much willing to do anything to feel better at
No. Unfortunately not. The dna in your body cannot be erased by a bone marrow transplant. Very sorry!
Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.
See a Dermatologist. Ehlers Danlos Syndrome has 6 subtypes, (prior to reclassification in 1997, there were 11) all with varying symptoms, complications and requirements for care from a variety of specialists. If you begin with a dermatologist, they can help you find genetic counseling as well as the required specialists you would need to manage the complications associated with your subtype of Ehlers Danlos Syndrome.
ED Syndrome. This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case.