10 doctors weighed in:
What is the best therapy for rett syndrome?
10 doctors weighed in

Dr. James Ferguson
Pediatrics
5 doctors agree
In brief: Supportive
Unfortunately, there is no treatment that will cure this process.
Each patient will gradually accumulate a series of medical needs as the disorder progresses.A primary doc is needed to coordinate care and handle basic needs and specialty docs would be needed on a periodic basis.The focus of care is preserving function for as long as possible and maintaining a quality of life.

In brief: Supportive
Unfortunately, there is no treatment that will cure this process.
Each patient will gradually accumulate a series of medical needs as the disorder progresses.A primary doc is needed to coordinate care and handle basic needs and specialty docs would be needed on a periodic basis.The focus of care is preserving function for as long as possible and maintaining a quality of life.
Dr. James Ferguson
Dr. James Ferguson
Thank
Dr. Troy Reyna
Surgery - Pediatric
3 doctors agree
In brief: Variable
Depends on the child's symptoms.
Difficulty in feeding may require a gastrostomy feeding tube. Scoliosis may require bracing and/or surgery. Seizures will mandate medical therapy.

In brief: Variable
Depends on the child's symptoms.
Difficulty in feeding may require a gastrostomy feeding tube. Scoliosis may require bracing and/or surgery. Seizures will mandate medical therapy.
Dr. Troy Reyna
Dr. Troy Reyna
Thank
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