10 doctors weighed in:

Want to help keep quality of life after diagnosis of dementia ( Lewy bodies)?

10 doctors weighed in
4 doctors agree

In brief: Understand disease

Neurodegenerative d/o featuring milder physical parkinsonism than parkinson's disease typically.
(slowed movements, stiff/rigid muscles & posture, possibly resting tremor). But with early dementia, often with associated psychosis (visual hallucinations, delusional thoughts), excessive sleepiness, depression/anxiety/apathy, & rbd. Rbd = rem behavior d/o, causing acting-out of dreams in rem sleep.

In brief: Understand disease

Neurodegenerative d/o featuring milder physical parkinsonism than parkinson's disease typically.
(slowed movements, stiff/rigid muscles & posture, possibly resting tremor). But with early dementia, often with associated psychosis (visual hallucinations, delusional thoughts), excessive sleepiness, depression/anxiety/apathy, & rbd. Rbd = rem behavior d/o, causing acting-out of dreams in rem sleep.
Dr. Robert Hutchman
Dr. Robert Hutchman
Thank
4 doctors agree

In brief: Use available Rx!!!!

Dopamine meds for physical parkinsonism: Azilect (mao-b selective inhibitor) & sinemet +/- Comtan (stalevo (carbidopa and levodopa and entacapone) is both together).
Tailor rx watching for side effects. Avoid Dopamine agonists (requip xl/mirapex er/neupro)--too side effect prone for lewy body patients. For dementia: namenda, paired with Exelon patch or aricept. For psychosis: seroquel or even clozaril. For excess sleepiness: nuvigil.

In brief: Use available Rx!!!!

Dopamine meds for physical parkinsonism: Azilect (mao-b selective inhibitor) & sinemet +/- Comtan (stalevo (carbidopa and levodopa and entacapone) is both together).
Tailor rx watching for side effects. Avoid Dopamine agonists (requip xl/mirapex er/neupro)--too side effect prone for lewy body patients. For dementia: namenda, paired with Exelon patch or aricept. For psychosis: seroquel or even clozaril. For excess sleepiness: nuvigil.
Dr. Robert Hutchman
Dr. Robert Hutchman
Thank
Dr. Susan Uhrich
Psychiatry
4 doctors agree

In brief: Learn as much

As you can about the illness and how to deal with it.
Tha alzheimer's association is a good place to start. I wish you the best.

In brief: Learn as much

As you can about the illness and how to deal with it.
Tha alzheimer's association is a good place to start. I wish you the best.
Dr. Susan Uhrich
Dr. Susan Uhrich
Thank
Dr. Eddie Nakhuda
Internal Medicine - Geriatrics

In brief: Beyond yourcontrol

Create a surrogate whoshould have your power of attorny & desires often when DX is made power to rationalise & decide is gone be specific with your wishes.

In brief: Beyond yourcontrol

Create a surrogate whoshould have your power of attorny & desires often when DX is made power to rationalise & decide is gone be specific with your wishes.
Dr. Eddie Nakhuda
Dr. Eddie Nakhuda
Thank
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