4 doctors weighed in:
My daughter takes levocarnitine for her genetic disorder, ga-1. Is there anything I can do about the fishy odor she has as a side effect?
4 doctors weighed in

Dr. Scott McLean
Clinical Genetics
1 doctor agrees
In brief: Maybe Chlorophyll?
You probably see your metabolic team pretty regularly - your biochemical geneticist, genetic counselor, and metabolic dietician.
They see this all the time and may have some hints. For some children on l-carnitine, a supplement of chlorophyll helps with the odor. Before you try anything, though, make sure your metabolic team is aware and gives their approval.

In brief: Maybe Chlorophyll?
You probably see your metabolic team pretty regularly - your biochemical geneticist, genetic counselor, and metabolic dietician.
They see this all the time and may have some hints. For some children on l-carnitine, a supplement of chlorophyll helps with the odor. Before you try anything, though, make sure your metabolic team is aware and gives their approval.
Dr. Scott McLean
Dr. Scott McLean
Thank
Dr. Chitrita Roy
Pediatrics
1 doctor agrees
In brief: Not much
First find the right dose after discussion with your child's physician.
Sometimes just dose reduction will decrease the fishy odor. May try activated charcoal.

In brief: Not much
First find the right dose after discussion with your child's physician.
Sometimes just dose reduction will decrease the fishy odor. May try activated charcoal.
Dr. Chitrita Roy
Dr. Chitrita Roy
Thank
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