4 doctors weighed in:

My daughter takes levocarnitine for her genetic disorder, ga-1. Is there anything I can do about the fishy odor she has as a side effect?

4 doctors weighed in
Dr. Scott McLean
Clinical Genetics
1 doctor agrees

In brief: Maybe Chlorophyll?

You probably see your metabolic team pretty regularly - your biochemical geneticist, genetic counselor, and metabolic dietician.
They see this all the time and may have some hints. For some children on l-carnitine, a supplement of chlorophyll helps with the odor. Before you try anything, though, make sure your metabolic team is aware and gives their approval.

In brief: Maybe Chlorophyll?

You probably see your metabolic team pretty regularly - your biochemical geneticist, genetic counselor, and metabolic dietician.
They see this all the time and may have some hints. For some children on l-carnitine, a supplement of chlorophyll helps with the odor. Before you try anything, though, make sure your metabolic team is aware and gives their approval.
Dr. Scott McLean
Dr. Scott McLean
Thank
Dr. Chitrita Roy
Pediatrics
1 doctor agrees

In brief: Not much

First find the right dose after discussion with your child's physician.
Sometimes just dose reduction will decrease the fishy odor. May try activated charcoal.

In brief: Not much

First find the right dose after discussion with your child's physician.
Sometimes just dose reduction will decrease the fishy odor. May try activated charcoal.
Dr. Chitrita Roy
Dr. Chitrita Roy
Thank
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