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What hardships would a parent encounter when raising a child with neurofibromatosis?
5 doctors weighed in

2 doctors agree
In brief: Tumors-seen and unse
Nf - autosomal dominant disorder in which neurofibromas grow and while these tumors may be benign, they often impinge on vital structures, compressing nerves and other tissues they can be difficult, if not impossible to fully remove.

In brief: Tumors-seen and unse
Nf - autosomal dominant disorder in which neurofibromas grow and while these tumors may be benign, they often impinge on vital structures, compressing nerves and other tissues they can be difficult, if not impossible to fully remove.
Dr. Jeffrey Gene Kaplan
Dr. Jeffrey Gene Kaplan
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Dr. Cindy Juster
Pediatrics
1 doctor agrees
In brief: Unfortunately, many.
Neurofibromatosis (nf) is a progressive, lifelong condition that is associated with growths in the brain, spine, eye area, heart, skin, &/or bone, as well as lung & hearing problems.
A child with nf requires regular follow up with a pediatrician and multiple subspecialists to address any complications from these growths. Medication and even surgery can be required, as can educational support.

In brief: Unfortunately, many.
Neurofibromatosis (nf) is a progressive, lifelong condition that is associated with growths in the brain, spine, eye area, heart, skin, &/or bone, as well as lung & hearing problems.
A child with nf requires regular follow up with a pediatrician and multiple subspecialists to address any complications from these growths. Medication and even surgery can be required, as can educational support.
Dr. Cindy Juster
Dr. Cindy Juster
Thank
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