What can be done about bleeds from hht, hereditary hemorrhagic telangiectasia?

Embolism. Bleeding from hht fall into two categories - minor ie. Small bleeds from telangectasia on mucosal surfaces like the nose/lips that can be inconvenient but usually stop easily, and potentially life threatening bleeds from avns in the lung, liver or brain. These avns should be screened for on a regular basis once hht has been diagnosed and may need embolization (sealed up from the inside) if found.

Related Questions

How hard is it to live with hht (hereditary hemorrhagic telangiectasia)?

Complex Q. Everyone is different. If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/. Read more...

What do I need to know about living with hht (hereditary hemorrhagic telangiectasia).?

Complex Q. If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/. Read more...

Can you help me with hereditary hemorrhagic telangiectasia (hht) please give me advice?

Certainly. The most accurate information is available here: http://ghr.nlm.nih.gov/condition/hereditary-hemorrhagic-telangiectasia There are clinics in various locations around the country, Including one here in San Diego. Read more...

What is hereditary hemorrhagic telangiectasia?

History & Physical. Hht, or osler-weber-rendu syndrome, can be detected on physical examination with telangiectasia (red, lacy like, dilated blood vessels that blanch with pressure) over a patients oral mucosa (lips, cheeks, tongue) etc and on their skin. Patients may also have a history of recurrent nosebleeds and maybe even GI bleeding. Read more...

How bad is having hereditary hemorrhagic telangiectasia?

HHT Normal Life. You will see in the medical literature that most people with hht have a normal lifespan.The commonly seen skin lesions and nosebleeds usually develop during childhood. The avms (arterial-venous malformations) are thought to be present from birth, but don't have to cause any symptoms. Frequent nosebleeds are usually the most common symptom . Read more...

How do people treat hereditary hemorrhagic telangiectasia?

Investigate. Most people with hht just have dilated tiny blood vessels visible in their skin, but the abnormal blood vessels can occur anywhere in the body and you would want to have a doctor investigate, especially to make sure you don't have a vascular lesion or aneurism in the brain that could cause more serious trouble. Read more...

Drs, how do you detect hereditary hemorrhagic telangiectasia?

History & Physical. Hht, or osler-weber-rendu syndrome, can be detected on physical examination with telangiectasia (red, lacy like, dilated blood vessels that blanch with pressure) over a patients oral mucosa (lips, cheeks, tongue) etc and on their skin. Patients may also have a history of recurrent nosebleeds and maybe even GI bleeding. Read more...

I was just wondering how bad is hereditary hemorrhagic telangiectasia?

Not that bad. You will see in the medical literature that most people with hht have a normal lifespan.The commonly seen skin lesions and nosebleeds usually develop during childhood. The avms (arterial-venous malformations) are thought to be present from birth, but don't have to cause any symptoms. Frequent nosebleeds are usually the most common symptom. Read more...