5 doctors weighed in:

What to do if I have ehlers danlos syndrome! please help!?

5 doctors weighed in
Dr. Robert Lowe
Pediatric Rheumatology
4 doctors agree

In brief: See geneticist..

If you haven't already seen a genetics doctor, you should to make sure you have been diagnosed correctly.
If you do have ehlers-danlos syndrome, you should be checked out by an ophthalmologist (for possible displaced lenses), cardiologist (possible heart problems), and physical therapist (for strengthening muscles without injury). Preventative regular visits for these problems are recommended.

In brief: See geneticist..

If you haven't already seen a genetics doctor, you should to make sure you have been diagnosed correctly.
If you do have ehlers-danlos syndrome, you should be checked out by an ophthalmologist (for possible displaced lenses), cardiologist (possible heart problems), and physical therapist (for strengthening muscles without injury). Preventative regular visits for these problems are recommended.
Dr. Robert Lowe
Dr. Robert Lowe
Thank
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