1 doctor weighed in:

Please help! what is the infant mortality rate of neurofibromatosis 1?

1 doctor weighed in
Dr. Gerald Mandell
Nuclear Medicine

In brief: Depends amt. of nf

Congenital generalized (disseminated) neurofibromatosis (detected prenatally) is associated with a poor prognosis, with a mortality rate of 92%.
Survival rates for patients detected before and after birth were 28% and 62%.However most cases of nf are focal and not disseminated without evidence of increased infantile mortality rate. In people with nf the overall decrease in life span is about 8 yrs.

In brief: Depends amt. of nf

Congenital generalized (disseminated) neurofibromatosis (detected prenatally) is associated with a poor prognosis, with a mortality rate of 92%.
Survival rates for patients detected before and after birth were 28% and 62%.However most cases of nf are focal and not disseminated without evidence of increased infantile mortality rate. In people with nf the overall decrease in life span is about 8 yrs.
Dr. Gerald Mandell
Dr. Gerald Mandell
Thank
Read more answers from doctors