23 doctors weighed in:
I have Marfan syndrome. Is there tests that can prolong my life expectancy?
23 doctors weighed in

Dr. Scott McLean
Clinical Genetics
20 doctors agree
In brief: An echocardiogram
If you have marfan syndrome, you should be aware that your cardiologist can use ultrasound to watch for the gradual enlargement of your aorta.
Depending on your age, height, and weight, she can determine whether your aorta is growing larger than normal and recommend either medicine, like a beta blocker, or surgery to prevent dissection or rupture of the aorta.

In brief: An echocardiogram
If you have marfan syndrome, you should be aware that your cardiologist can use ultrasound to watch for the gradual enlargement of your aorta.
Depending on your age, height, and weight, she can determine whether your aorta is growing larger than normal and recommend either medicine, like a beta blocker, or surgery to prevent dissection or rupture of the aorta.
Dr. Scott McLean
Dr. Scott McLean
Thank
1 comment
Dr. Edward Smith
Cerebral aneurysms are an occasional accompaniment to Marfan's. If you have headaches, or family history of stroke or unexplained sudden death, brain arterial imaging should be done.
Dr. James Ferguson
Pediatrics
3 doctors agree
In brief: Monitor issues
If you haven't done so yet, you should be followed at least on occasion by someone aware of the unique health issues of marfan patients.
Surveillance of your heart & aortic root with cardiac ultrasound can pick up early signs of change that would warrant surgery. A thorough understanding of how the process has affected you may require a discussions with a geneticist.

In brief: Monitor issues
If you haven't done so yet, you should be followed at least on occasion by someone aware of the unique health issues of marfan patients.
Surveillance of your heart & aortic root with cardiac ultrasound can pick up early signs of change that would warrant surgery. A thorough understanding of how the process has affected you may require a discussions with a geneticist.
Dr. James Ferguson
Dr. James Ferguson
Thank
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