Doctor insights on:
Xanthomonas Phage Cf Virus
Progressive disease: Cystic fibrosis (CF) is a progressive, lifelong condition in which the glands that produce mucus, sweat, and intestinal secretions do not function properly. Thick mucus accumulates in the lungs, leading to breathing difficulty and infection. CF also impairs digestion, and affected males are usually infertile. ...Read moreSee 1 more doctor answer
Significant ones: CF is a multisystem disease. Lungs can lose function and be infected without doing the right things. Nutrition and liver function can be affected if your child does not eat well or take his supplements and enzymes. You will need to make sure you are consistent with the care that your child's specialists and doctors recommend. This can lead to better health and less hospitalization for your child. ...Read more
High in carriers?: The CF screening test checks for a chemical made by the pancreas, an organ that helps with digestion. This chemical is called immunoreactive trypsinogen, or IRT. It is normally found in small amounts in the body. It can be elevated in patients with CF and in carriers who have normal sweat chloride tests ...Read more
Maybe: Cystic fibrosis is a condition that may cause the blackage of the fallopian tubes and thus may inhibit normal fertility. CF however, has a wide variation in how it may impact each individual and may allow for normal conception. I have several patients that have conceived without any art. Ectopic pregnancy is a significant risk and genetic counseling is a must as this is an inhereted condition. ...Read more
Had normal bm's. Last two mnths hard bm's every 5-6 days, now for the last week diarrhea, couple x's a day. Have fms/cf. Your thoughts? Diet normal.
I had CF scan on wed and doc called on thursday for me to come see him next thursday to discuss results.....He cancelled cystocopy .....Is this good?
What does the manual clearing of mucus for children with PCD (or cf, which i've read is similar) involve? Is this something i would do daily at home?
Chest physiotherapy: Clearing mucus from the lung can be done by effective chest physiotherapy. There are vests available and valves which create pressure to help clear the mucus from the lung. One link that you may find useful is thevest.Com and also checking with the cff.Org for information. Prmg will rev records faxed to 8582599689. ...Read moreSee 1 more doctor answer
You say its unlikly to get CF unless both parents are carriers but can it be possile at all if only 1 parent and other family members have it and pass?
Simple fact: You must get a CF gene from both biologic parents. If mom and an uncle are carriers, they need to have sex to pass the defective gene to a baby. It doesn't matter how many carriers are in a family, the only ones that matter are the parents of the potential baby.The chance of a spontaneous mutation in a single newborn to add to 1 parents carrier gene is less than 1/1,000,000. ...Read moreSee 1 more doctor answer
Old Days: Back in the "old days, " patients with CF would frequently die, and the autopsy findings of the lungs showed scarring ("fibrosis") and bubbles ("cysts, " "cystic"). Thus, it was called cystic fibrosis. We know much more now about this disease, but the old name stuck. ...Read moreSee 1 more doctor answer
That depends...: I have seen CF patients carry pregnancy to full term. The risk is the same as for anyone with impaired lung function and/or malnutrition (very common problems in CF patients). You should discuss pregnancy with your CF provider, usually a lung doctor, and maybe also a specialist in high risk ob. They can discuss the the risks of pregnancy based on your specific health status. Good luck. ...Read moreSee 1 more doctor answer
In 20w u/s,Dr told "bright bowel".Tested neg for CF,Down syn,infections.What is causing this.how to protect my baby?I am worried!
Better than ever b4: Children diagnosed with CF now have many advantages over those diagnosed even a few years ago. Genetic testing, special aerosolized medications, aggressive treatment of infections with antibiotics and nutritional supplementation (fat soluble vitamins, enzymes, etc.) have all contributed to an increase in quality of life and longevity. CF patients commonly live into their 30s and 40s in the us. ...Read more
B. Cepacia and CF: If you become colonized with B. cepacia,you will need to be more diligent than ever with the treatments you are already doing: Airway clearance, Bronchodilators, Mucolytics, and Nutrition.If the colonization turns into an infection,things get a bit trickier. B. cepacia is highly resistant to most antibiotics. So once you become infected it is hard to get rid of. ...Read more
A worthy question: If this bothers you, have a test run to see if you are an asymptomatic carrier of the CF gene.(you have 50% risk of it) If not, you cannot have CF kids.If so, your spouse can be screened also.If he is not, no CF kids.If you both are, the risk would be the same as your sisters with 1/4 chance with each pregnancy. ...Read moreSee 1 more doctor answer